Published in Stories on December 15, 2015
Tags: ALS, als stories, awareness, care, caregiving, community, families with ALS
Last Christmas I was playing hockey. Now I need help to stand up. John Hamm, diagnosed with ALS in 2014 One of John Hamm’s favourite holiday traditions is playing pond hockey with his three kids. But this year, he won’t be strapping on skates. This holiday season, John’s wife Cathy will bundle him up in […]
Published in Stories on December 1, 2015
Tags: fundraising, giving, support
Today is Giving Tuesday. On this very special day of giving from the heart, I hope you’ll give the most precious gift of all — the gift of hope. Right now, approximately 3,000 Canadians are living with ALS (Amyotrophic Lateral Sclerosis) — a degenerative disease that quickly and progressively steals a person’s mobility, speech and […]
Published in Stories on September 23, 2015
Tags: ALS, ALS awareness, fundraising, giving, Ice Bucket Challenge, support
Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game. We want to thank […]
Published in Stories on July 30, 2015
Tags: ALS, ALS awareness, fundraising, giving, Ice Bucket Challenge, support
“The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat […]
Published in Stories on June 12, 2015
Tags: ALS, ALS awareness, fundraising, giving, Ice Bucket Challenge
Canada you made a difference! $17 million was raised through the ALS Ice Bucket Challenge in 2014 ALS Research: $11.5 million went to ALS research from ALS Societies across Canada We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program By October 2015 $12.9 MILLION to be invested in […]
Published in Research on April 5, 2015
Tags: ALS, ALS gene, ALS research, genetic research
A large consortium of researchers from six countries have definitively identified a new ALS gene called TANK-binding kinase 1 (TBK1) by performing a rigorous study that involved sequencing of more than 2800 people with ALS compared with more than 6000 control samples. Canadian researcher Dr. Guy Rouleau, Director of the Montreal Neurological Institute and his […]