About Us

The ALS Society of Canada is working to change what it means to live with amyotrophic lateral sclerosis, an unrelenting and currently terminal disease.

Grounded in and informed by the Canadian ALS community, we respond to the urgent unmet need for life-changing treatments by investing in high-quality research that will fuel scientific discovery and by engaging industry, supporting increased clinical capacity and advocating for equitable, affordable and timely access to proven therapies.

Responding to the tremendous need for current and credible ALS knowledge, awareness and education, we empower Canadians affected by ALS to navigate the current realities of ALS, be informed consumers of ALS information, and advocate effectively for change. In Ontario, we provide direct community services to help people navigate ALS.

Founded in 1977, we are a registered charity that receives no core government funding – our work is powered by generous donors who share our vision of a future without ALS.

Vision, Mission, Values

Our vision is a future without ALS.

Our mission is our everyday journey as an organization:

We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS.

Our values are the principles that guide our work every day:

  • Accountability
  • Collaboration
  • Compassion
  • Dynamic
  • Integrity
  • Respect

Strategic Plan

In 2016 – 2017 ALS Canada embarked on an ambitious process to engage the ALS community and to learn from others as we sought to create a vision for the future and set a strategic plan to get there.

In April 2018, our Board of Directors approved our 2018 to 2023 strategic plan. This plan will guide ALS Canada through the next stage of our growth and development with a focus on three strategic impacts:

  1. People affected by ALS receive the best possible standard of care.
  2. More treatments are available to improve quality of life and extend lifespan.
  3. People are empowered to make informed decisions about ALS.

There is an inherent understanding that these strategic impacts require a collective effort and speak to how the lives of people affected by ALS will be different. It is understood that no one organization can or will create this future state; it will take the global ALS community working together to achieve these outcomes.

Inclusion, Diversity, Equity, Accessibility (IDEA)

At ALS Canada, we are continuing our learning and the work of addressing inclusion, diversity, equity, and accessibility.

We are committed to understand and consider how these matters affect the ALS community and how they reflect in our culture for our employees and volunteers, in the work we do to support the ALS community we serve, in the research we invest in, and in our collaboration with the healthcare system and with partners and industry.

It is important that we examine how as an organization we can demonstrate leadership to address systematic issues.

As part of this work, ALS Canada is an Employer Partner with the Canadian Centre for Diversity and Inclusion (CCDI). The partnership provides us access to resources and information from both a Canadian and global perspective on a variety of topics as they relate to all aspects of IDEA.