Client Services Advisory Council

The Client Services Advisory Council is composed of individuals with a variety of experiences with ALS who provide input and perspectives to support ALS Canada in improving the journey of people and families living with ALS in Ontario. The Council serves in an advisory capacity to the Board, making recommendations for client service program delivery, community partnerships and provincial advocacy according to the strategic priorities.


Patrick Nelson
Chair, ALS Canada Board; Principal, Santis Health; family member of a loved one who had ALS

Margot Algie
Person Living with ALS, Retired from Corporate Communications

Ron Black
Retired from medical supply and equipment industry and Respiratory Therapist

Sheldon Crystal
Executive Director, Qualicare Vaughan

Tasneem Dharas
Operations Manager, Assistive Technology Clinic, Sunnybrook Health Sciences Centre

Heidi Kinnon
Senior Manager, Central LHIN

Stephanie Mazzei
Consultant related to therapeutics, diagnostics, and digital health in cancer care

Alan Medcalf
IT executive, experienced volunteer and Person Living with ALS

Vincent Quinn
Person living with ALS

Sarah Reedman
Senior Manager, Ontario Community Services

Dr. Christen Shoesmith
Neurologist, London Health Sciences Centre

Lisa Sullivan
Executive Director Hospice Care Ottawa and Former Caregiver to Loved One who had ALS

Sherry SzucskoBedard
Nurse, Walk to End ALS Committee member, and Former Caregiver to Loved One who had ALS

Dr. Anu Tandon
Respirologist, Sunnybrook Health Sciences Centre

Scientific and Medical Advisory Council

The Scientific and Medical Advisory Council provides strategic advice to the Board and management of ALS Canada to ensure all research activities contribute to the vision of ALS Canada, are aligned with the organization’s strategic priorities, are informed by best practices, and are carried out with integrity. The Council also facilitates collaboration within the Canadian ALS research community and supports the Canadian ALS research community’s involvement in international initiatives.


Christine Vande Velde, PhD
ALS Canada Board Member; Associate Professor, Université de Montréal

Turgay Akay, PhD
Dalhousie University

Vanina Dal Bello-Haas, PhD, PT
McMaster University

François Gros-Louis, PhD
Université Laval

Wendy Johnston, MD
University of Alberta

Hanns Lochmüller, MD, PhD
University of Ottawa

Cali Orsulak, BscPharm, BCPS, CDE
Patient Community Representative

Robin Parks, PhD
University of Ottawa

Gerald Pfeffer, MD, PhD
University of Calgary

Janice Robertson, PhD
University of Toronto

Kerri Schellenberg, MD
University of Saskatchewan

Paula Trefiak
Patient Community Representative


Colleen Doyle – Manager, Research & CALS, ALS Canada

Geneviève Matte – CRCHUM, Université de Montréal, CALS Chair (voting member)

Tammy Moore – CEO, ALS Canada

Patrick Nelson – Chair, ALS Canada Board; Principal, Santis Health; family member of a loved one who had ALS

David Taylor – VP Research, ALS Canada