At ALS Canada, we see firsthand the tremendous impact of an ALS diagnosis – physically, psychologically and financially. The realities of the disease are harsh – and they reinforce the need for better government support and access within the health care system.
That is why we engage with officials in the federal and Ontario governments to represent the voices and experiences of people living with ALS. We advocate for policy changes that will have a meaningful impact on people living with ALS today and in the future, including equitable, timely and affordable access to therapies, improved home and community care, research funding and more.
We also engage at the local level with health care providers and agencies to help the people we support access services and other resources that can lessen the burden of living with ALS.