Take Action for Change

Approaching government through a combination of channels at an organizational level and individual level puts the ALS community in a better position to make our voices heard.

While the ALS Society of Canada continues to engage with officials in the federal and Ontario governments to advocate for policy changes that will have a meaningful impact on people living with ALS today and in the future – it’s critical that the voices and experiences of people living with ALS are heard.

Below are resources to help you engage with your local elected officials and tell them the Time is Now for change.

Community Advocacy Toolkit

Access to innovative therapies is an urgent issue for people living with an ALS and the current drug approval and reimbursement processes in Canada do not function in a way that reflects the realities of what it means to live with ALS. Faster public coverage decisions for new proven treatments are critical and needed across Canada.

The ALS Society of Canada’s The Time is Now position paper offers two distinct solutions to get Health Canada-approved therapies to Canadians living with ALS in a timeframe that more accurately reflects the urgency of loss faced by this community.

In this Toolkit you will find the following resources:

  • Template Meeting Request: This template letter can be used to request a meeting with your federal or provincial elected officials. Tips for how to find the contact information for your elected official are included.
  • ALS Fact Sheet: Which you can refer to for key facts and figures when speaking and can be shared with elected officials.
  • Sample Meeting Flow: This document is a guide to help you navigate any meetings with elected officials. This is an internal document and should not be shared.
  • Eversana “How to Tell Your Story”: This guide, developed by our partners at Eversana, helps you develop and tell your own story.
  • The Time is Now Meeting Deck (Provincial): This presentation can be used during any meetings with Provincial elected officials to explain the issue of access to therapies. It can be sent to the elected official as background information.
  • The Time is Now Meeting Deck (Federal): This presentation can be used during any meetings with Federal elected officials to explain the issue of access to therapies. It can be sent to the elected official as background information.
  • Report Back Form: Use this form to share with ALS Canada how your meeting went and any other important information.

Toolkit Download Form