News

In a significant moment for the ALS community, Qalsody (tofersen) has been approved in Canada for the treatment of ALS in adults who have a pathogenic variant (also known as a mutation) in the superoxide dismutase 1 (SOD1) gene. This…

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team. From global conferences to impactful partnerships, our Research Team had a strong start to 2025.  By actively engaging with the global ALS community, supporting ALS…

What is a Brain-Computer Interface (BCI)?A brain-computer interface (BCI) is a system that allows direct communication between the brain and an external device, such as a computer. BCI studies often include participants living with ALS, as the technology holds…

The ALS Society of Canada (ALS Canada) is proud to once again partner with Mitsubishi Tanabe Pharma Canada to support promising advancements in ALS care through the 2024 Mitsubishi Tanabe Pharma Canada Fellowship. This fellowship funds individuals dedicated to improving…

ALS researchers worldwide continue to build upon existing work and make new discoveries in the hopes of realizing a world free of ALS. In the January 2025 Research Update, explore new insights into predicting disease onset, new potential therapies and…

The ALS Society of Canada (ALS Canada) is committed to Canada’s contribution to global ALS research. We’re excited to share our involvement in the Accelerating Medicines Partnership® in Amyotrophic Lateral Sclerosis (AMP® ALS), led by the Foundation for the National…

The initiative will provide virtual support to Canadians affected by ALS nationwide through genetic counselling, connecting people to local genetic experts, and providing education on ALS genetics TORONTO —The ALS Society of Canada (ALS Canada) is proud to announce…

ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a world free of ALS. In the October 2024 Research Update, explore new insights into promising brain-computer interface technology,…