Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Advocacy Update – April – June 2022


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

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ALS Canada Research Update, June 2022


ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the June 2022 Research Update, you’ll learn about the progress researchers have made in...

Posted in: Research

ALS Awareness Month brings access to treatments in Canada to the forefront

ALS Canada urges you to raise your hand in support of continuing to build Canada as a primary destination for ALS clinical trials


Toronto – The ALS Society of Canada (ALS Canada) joins the global ALS community in recognizing June as ALS Awareness Month. More than 3,000 Canadians live with amyotrophic lateral sclerosis (ALS), a neuromuscular disease that paralyzes people because the brain...

Posted in: Advocacy

Raise your hand in support of continuing to build Canada as a primary destination for ALS clinical trials

With its world-class clinics and ALS specialists, Canada is well positioned to be a leader in clinical trial access.


History and context Canada has a rich history in ALS clinical trials. Though an ALS research community developed here alongside the rest of the world in the late 1970s and 1980s, Dr. Andrew Eisen at Vancouver General Hospital is widely...

Posted in: Advocacy, Research

Discovery Grant gives lab capacity to deepen its focus on ALS


TDP-43 is a protein that lives in the nucleus of our cells. But in at least 97 per cent of ALS patients, TDP-43 somehow finds its way out of the nucleus – also called “mislocalization” – and starts to “clump”...

Posted in: Research

2022 ALS Canada Research Forum fosters continued collaboration in the research community


Researchers are at a critical juncture in the study of ALS, with more pieces of the ALS biology puzzle available today than ever before. As labs continue to put the pieces together and identify new targets for therapeutics, work is...

Posted in: Research