Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Climbing for a cure


In just a few short weeks, Chris Clarke will embark on one of the most challenging physical journeys he’s encountered by trekking Mount Kilimanjaro in Tanzania, but it’s nothing as tough as the journey he and his family faced with...

“While I still can, I will inspire my community to learn about ALS”: Jane’s story


There’s hardly a spot left on Jane’s left arm these days. That’s because so many of her family, friends, and neighbours are getting a tattoo with Jane — they choose one that’s meaningful to them and Jane gets the same...

Posted in: Advocacy, Stories

“While I still can, I will focus on what’s possible”: Steve’s story


Steven Gallagher has chosen hope and optimism over despair and gloom time and time again; H-O-P-E are four letters that have guided him over the past three years and throughout his life. Those who follow Steve on social media know...

Posted in: Advocacy, Stories

ALS Canada Advocacy Update – October – December 2022


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

“While I still can, I will cherish my time with my children”: Anne-Marie’s story


Anne-Marie Marcil considers herself the luckiest unlucky woman. Last year, in April, amid all the uncertainty of the pandemic, she was diagnosed with ALS at just 46 years of age. As a mother to two young daughters, aged seven and...

Posted in: Advocacy, Stories

You’re supporting the ALS community today and tomorrow


It’s been 15 years since my cousin Doug, who was like a big brother to me, was diagnosed with ALS. Our options were limited then with only one approved therapy available. We didn’t know what to do and who to...