Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Can zebrafish help explain how mutations in this gene contribute to ALS?

Investigating the role of mutations in CHCHD10 using ALS cell and zebrafish genetic models


An interdisciplinary Canadian team headed by Dr. Gary Armstrong of The Neuro (Montreal Neurological Institute-Hospital)  is poised to explore how a recently linked pair of genes contribute to the onset of ALS. In 2014, mutations in a gene called CHCHD10...

Posted in: Research

Knowing the issues that matter to the ALS Community: ALS Election Commitments


The 2021 federal election is wrapping up in less than a week! With Election Day scheduled for Monday, September 20, 2021, now more than ever, it’s important to know the issues that matter to you before you cast your vote....

Posted in: Advocacy

ALS Canada Advocacy Update – August 2021


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

Posted in: Advocacy Update
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Is it possible to target the root cause of ALS linked to the C9ORF72 gene?

Controlling a DNA repeat expansion may indicate a path for future treatment


Dr. Christopher E. Pearson, a genetics expert based at The Hospital for Sick Children (SickKids) in Toronto and Full-Professor at the University of Toronto, has studied DNA repeat expansions, a type of genetic mutation common to neurodegenerative disease, for decades....

Posted in: Research

ALS Canada Research Update, June 2021


The second quarter of 2021 continues to see progress within the field of ALS research. Some of the most notable discoveries at this point in the year include the identification of a possible link between the vascular system and ALS,...

Posted in: Research

Could mindfulness improve quality of life for people living with ALS?

Discovery Grant will fuel an interdisciplinary mindfulness study for people living with ALS and their caregivers


Thanks to joint funding from Brain Canada and ALS Canada through the 2020 Discovery Grant Program, a team based at The Neuro (Montreal Neurological Institute-Hospital) will be able to pioneer a study on mindfulness in ALS, with the goal of...

Posted in: Research