Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Research Update, October 2021


ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the October 2021 Research Update, you’ll learn about the progress researchers have made in...

Posted in: Research

ALS Canada Advocacy Update – October 2021


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

Posted in: Advocacy Update
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How does the loss of the normal function of DNAJC7 cause ALS?

Understanding how mutation in “first responder” gene can lead to neurodegeneration in ALS


Thanks to new funding from the ALS Society of Canada and Brain Canada, Dr. Martin Duennwald of Western University, an expert on protein misfolding in neurodegenerative disease, is coming together with Dr. Sali Farhan, an up-and-coming Canadian researcher at The...

Posted in: Research

The Time is Now: All ALS Therapies should be granted priority review

The ALS community cannot wait 300 days for a Health Canada review


Health Canada recently began its review of AMX0035 to assess the therapy's safety, efficacy, and quality. This process began in August when Health Canada accepted the manufacturer's New Drug Submission (NDS). There are two timelines under which Health Canada conducts...

Posted in: Advocacy

Can zebrafish help explain how mutations in this gene contribute to ALS?

Investigating the role of mutations in CHCHD10 using ALS cell and zebrafish genetic models


An interdisciplinary Canadian team headed by Dr. Gary Armstrong of The Neuro (Montreal Neurological Institute-Hospital)  is poised to explore how a recently linked pair of genes contribute to the onset of ALS. In 2014, mutations in a gene called CHCHD10...

Posted in: Research

Knowing the issues that matter to the ALS Community: ALS Election Commitments


The 2021 federal election is wrapping up in less than a week! With Election Day scheduled for Monday, September 20, 2021, now more than ever, it’s important to know the issues that matter to you before you cast your vote....

Posted in: Advocacy