Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Novel collaborations could lead to more effective ways to treat patients with ALS


One of the first things that happens in neurodegenerative diseases is that neurons stop communicating with each other. And when neurons stop talking, they die. One hypothesis for this phenomenon is that the neurons get overly excited — so excited...

Posted in: Research

Knowing the issues that matter to Ontario’s ALS Community: 2022 Ontario Election


Now more than ever it is important to know the issues that matter to you before you cast your ballot on Thursday, June 2nd , 2022.   ALS Canada reached out to each major political party to get more details about...

Posted in: Advocacy

Breaking Down Barriers to Accessing Therapies: Changes to PMPRB Regulations


Over the past several years, ALS Canada, together with the ALS community and a coalition of patient groups across Canada, has raised the alarm about the consequences of the proposed changes to Patented Medicine Prices Review Board (PMPRB) regulations for...

Posted in: Advocacy

ALS Canada invests more than $800,000 in the future of ALS research

ALS Canada Research Program awards two Clinical Research Fellowships and five Trainee Awards


Toronto – Investing in specialized training in clinical care and research skills and supporting young minds are two important ways to continue to ensure the advancement of research across all areas related to amyotrophic lateral sclerosis (ALS). The ALS Canada...

Posted in: Research

How “accidental” discoveries can lead to new insights in ALS biology


“We need to understand the fundamentals, we need to understand the underlying cell biology so that we can create good, rationally designed therapies.” - Dr. Christine Vande Velde “Everything started with a discovery we found by accident,” said Dr. Christine...

Posted in: Research

What a new mouse model can teach us about weight loss, metabolism, and ALS


Two of the prominent hallmarks of ALS are weight loss and metabolic dysfunction. There are clues that hypermetabolism – when the body uses too much energy to regulate things like appetite, temperature, and hormones – might be a contributing factor,...

Posted in: Research