Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Alberta man first to be recruited for CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS


Garry Zelasek is the type of guy who would give you the shirt off his back. “He’s always been selfless that way,” says his wife, Michelle. “He’s just a very kind-hearted soul who is always putting other people before him.”...

Posted in: Research
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Frequently Asked Questions – ALBRIOZA (AMX0035)


Last Update: August 11, 2022 GENERAL What is ALBRIOZA (AMX0035)? ALBRIOZA (sodium phenylbutyrate/ursodoxicoltaurine) is indicated for the treatment of people living with amyotrophic lateral sclerosis (ALS). Sodium phenybutyrate is a histone deacetylase inhibitor that is believed to reduce a mechanism...

Posted in: Advocacy, Research

Driving momentum: 2021 Annual Report to the community


ALS Awareness Month is drawing to a close, but our efforts to create a future without ALS continue year-round. Driven by the ALS community, we look to create connection and impact, sharing the progress towards our mission along the way....

Posted in: Update

ALS Canada Advocacy Update – April – June 2022


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

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ALS Canada Research Update, June 2022


ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the June 2022 Research Update, you’ll learn about the progress researchers have made in...

Posted in: Research

ALS Awareness Month brings access to treatments in Canada to the forefront

ALS Canada urges you to raise your hand in support of continuing to build Canada as a primary destination for ALS clinical trials


Toronto – The ALS Society of Canada (ALS Canada) joins the global ALS community in recognizing June as ALS Awareness Month. More than 3,000 Canadians live with amyotrophic lateral sclerosis (ALS), a neuromuscular disease that paralyzes people because the brain...

Posted in: Advocacy