Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Advocacy Update – January-March 2022


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

Posted in: Advocacy Update
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A powerful collaboration offers crucial insights at the frontier of ALS biology


Our understanding of cell biology has been revolutionized in the past decade, leading to new insights on how motor neurons degenerate at the cellular level. Early-career researchers Ji-Young Youn at The Hospital for Sick Children (SickKids) and Hyun Kate Lee,...

Posted in: Research

ALS Canada Research Update, March 2022


ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the March 2022 Research Update, you’ll learn about advancements in our understanding of risk...

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ALS Canada Marks Rare Disease Day 2022 By Calling on Ontario to Champion Expedited Access to ALS Therapies


The ALS Society of Canada (ALS Canada) today marks Rare Disease Day 2022 by calling on the Ontario government to champion the urgent need for faster access to approved therapies for people living with Amyotrophic Lateral Sclerosis (ALS) – a...

Posted in: Advocacy

Truth may literally be in the eye of the beholder

How a novel biomarker could support earlier, non-invasive diagnosis and treatment for ALS


We’ve long heard that the eyes are the window to the soul. But researchers are finding a new twist on this proverb that has powerful implications for understanding neurodegenerative diseases like ALS: the eyes as the window to the brain....

Posted in: Research

$1.125 million investment to advance understanding, diagnosis and treatment of ALS

In partnership with Brain Canada Foundation, ALS Canada Research Program awards nine Discovery Grants


Toronto – With promising new therapies for amyotrophic lateral sclerosis (ALS) on the horizon, now is the time for ongoing investment in research discovery that will continue to fuel the development of treatments. That is why, together with Brain Canada,...

Posted in: Research