Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Raise your hand in support of continuing to build Canada as a primary destination for ALS clinical trials

With its world-class clinics and ALS specialists, Canada is well positioned to be a leader in clinical trial access.

History and context Canada has a rich history in ALS clinical trials. Though an ALS research community developed here alongside the rest of the world in the late 1970s and 1980s, Dr. Andrew Eisen at Vancouver General Hospital is widely...

Posted in: Advocacy, Research

Discovery Grant gives lab capacity to deepen its focus on ALS

TDP-43 is a protein that lives in the nucleus of our cells. But in at least 97 per cent of ALS patients, TDP-43 somehow finds its way out of the nucleus – also called “mislocalization” – and starts to “clump”...

Posted in: Research

2022 ALS Canada Research Forum fosters continued collaboration in the research community

Researchers are at a critical juncture in the study of ALS, with more pieces of the ALS biology puzzle available today than ever before. As labs continue to put the pieces together and identify new targets for therapeutics, work is...

Posted in: Research

Novel collaborations could lead to more effective ways to treat patients with ALS

One of the first things that happens in neurodegenerative diseases is that neurons stop communicating with each other. And when neurons stop talking, they die. One hypothesis for this phenomenon is that the neurons get overly excited — so excited...

Posted in: Research

Knowing the issues that matter to Ontario’s ALS Community: 2022 Ontario Election

Now more than ever it is important to know the issues that matter to you before you cast your ballot on Thursday, June 2nd , 2022.   ALS Canada reached out to each major political party to get more details about...

Posted in: Advocacy

Breaking Down Barriers to Accessing Therapies: Changes to PMPRB Regulations

Over the past several years, ALS Canada, together with the ALS community and a coalition of patient groups across Canada, has raised the alarm about the consequences of the proposed changes to Patented Medicine Prices Review Board (PMPRB) regulations for...

Posted in: Advocacy