Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Top Research Stories of 2021


As identified by the ALS Canada Research Team, here are the most newsworthy research stories of 2021 and a look ahead to 2022 with hope for what is to come. A possible third treatment for ALS under review by Health...

Posted in: Research
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In the face of hardship and an ALS diagnosis, love persists


Mutiat and Idris met on a street in Lagos, Nigeria 21 years ago and became fast friends. Their friendship was kindled for almost a decade before they realized they were in love and wanted to build a life together. “She...

Posted in: Stories

No stranger to adversity, Susheela faced ALS with courage


Advocacy and funding for research and community-based support services are things that were important to Susheela. She was featured in ALS Canada's eAdvocacy campaign this year which launched during ALS Awareness Month in June, and she's also featured in our...

Posted in: Stories

ALS Canada Advocacy Update – December 2021


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

Posted in: Advocacy Update
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Steve may have lost his singing voice, but he hasn’t lost hope


Steve Daly loved to belt out a tune for family and friends. The 50-year-old husband and father of four is known for his extroverted personality and, before being diagnosed with ALS, enjoyed playing hockey, riding road bikes with friends, cooking...

Posted in: Stories

Meeting an urgent need: Why it’s important now more than ever to give


“ALS doesn’t stop. Neither will we.” ALS researcher and ALS Canada Board Member Christine Vande Velde said these words at the start of the pandemic in reference to her team’s work in the lab, but they were quickly adopted as...

Posted in: Stories