Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Advocacy Update – January- March 2023


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

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Investing in the future change-makers of ALS research

The ALS Society of Canada and Brain Canada select latest Career Transition Award to support innovative ALS research


The ALS Society of Canada (ALS Canada) and Brain Canada are investing in the future of innovative scientists who are changing the landscape of amyotrophic lateral sclerosis (ALS) research and treatments in Canada. Together they are contributing a total of...

Posted in: Research

A day for action for the Rare Disease community


Today, February 28, marks Rare Disease Day. A day that provides the ALS Society of Canada (ALS Canada) a chance to bring awareness to the disease alongside other potentially lesser-known diseases to work together towards equity in health care, and...

Posted in: Advocacy

Climbing for a cure


In just a few short weeks, Chris Clarke will embark on one of the most challenging physical journeys he’s encountered by trekking Mount Kilimanjaro in Tanzania, but it’s nothing as tough as the journey he and his family faced with...

“While I still can, I will inspire my community to learn about ALS”: Jane’s story


There’s hardly a spot left on Jane’s left arm these days. That’s because so many of her family, friends, and neighbours are getting a tattoo with Jane — they choose one that’s meaningful to them and Jane gets the same...

Posted in: Advocacy, Stories

“While I still can, I will focus on what’s possible”: Steve’s story


Steven Gallagher has chosen hope and optimism over despair and gloom time and time again; H-O-P-E are four letters that have guided him over the past three years and throughout his life. Those who follow Steve on social media know...

Posted in: Advocacy, Stories