Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Collaboration in Pursuit of a Future Without ALS: $1 Million Invested in ALS Research

In partnership with Brain Canada Foundation, the ALS Canada Research Program awards eight Discovery Grants


Toronto – Sustained investment in transformative research is vital to unlocking the mysteries around the causes and progression of ALS, a devastating terminal disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles...

Posted in: recherche, Research, Update

Top Research Stories of 2020


Although 2020 was an unpredictable and challenging year, the ALS research community continued to push forward with major scientific advances in Canada and internationally. As identified by the ALS Canada Research Team, here are the most newsworthy research stories of...

Posted in: recherche, Research

Your messages of hope, strength and resiliency during the holiday season


What is community? It’s where we find people with whom we can share experiences. Community is where we are relentless in our efforts to change ALS forever. It’s where we come together and use our voice to fight for each...

Posted in: Stories

My brother Andrew, my only sibling, my closest friend.


Stories like the one below from the community are so important and really help people feel connected to one another. Right now we are collecting short stories and messages of hope from people like you so that we can share...

Posted in: Stories

ALS Research Update, November 2020


While 2020 has been an unpredictable and challenging year on many fronts, the ALS Canada Research Program continues to observe positive momentum in ALS research. This month you’ll learn about results from two different Phase 2 clinical trials in ALS;...

Posted in: Research, Update

ALS gave me a different perspective


Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight...