Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Canada’s rising stars in ALS research receive more than $1 million from the ALS Canada Research Program and Brain Canada


The generosity of Canadians has helped three early-career researchers to make ALS the focus of their work in the country’s labs and academic institutions. The research funding, which totals more than $1 million, has been awarded through the ALS Canada...

Posted in: Research

WALK for ALS early results: $3.9 million (and counting!) raised nationwide


Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the...

Posted in: Events

ALS societies across Canada mourn the loss of Mauril Bélanger


Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016...

Posted in: Stories

Ice Bucket Challenge leads to ALS gene discovery


Earlier this week researchers announced that the gene NEK1 has been found to play a significant role in the development of amyotrophic lateral sclerosis (ALS). This landmark discovery is the result of an 11-country research collaboration that was funded through...

Posted in: Research

June is ALS awareness month


Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of...

Posted in: Stories

Become a fundraiser through community engagement


Community engagement plays a really important role in fundraising for ALS Canada. We are grateful for everyone who gets involved and dedicates their time to hosting BBQ’s, block parties, dance-a-thons, and Ice Bucket Challenges! We could not do the work...

Posted in: Volunteers