ALS Canada Research Update, July 2024

ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the July 2024 Research Update, explore new insights into the progression of ALS at the cellular level, promising new therapeutic targets and biomarker candidates, modern genetic techniques, large-scale analyses […]

Welcoming the newest ALS Canada’s new Board of Directors

The ALS Society of Canada (ALS Canada) welcomes four new members to its Board of Directors this year: Mike Etuhoko from Alberta, Rob Reading from British Columbia, and Sharon Ranalli and Matthew Rotenberg from Ontario. ALS Canada’s Board of Directors is comprised of volunteers from diverse backgrounds who have come together to ensure that ALS […]

ALS Canada expresses gratitude and thanks to our four departing Board members in 2024

The ALS Society of Canada (ALS Canada) acknowledges with great admiration and gratitude the contributions of four members of the ALS Canada Board of Directors, whose terms are ending this year. Thank you, Laura Gay, Jude Groves, Patrick Nelson, and Dr. Michael Spivock, for your unwavering dedication, leadership, and guidance throughout your time with us. […]

Challenging ourselves for change: September events wrap up

That’s a wrap! Our September events have come to an end at ALS Canada, and we can’t help but look back at how the community came out to ride and pull to end ALS. Both the ALS Canada Pull to End ALS and ALS Canada Revolution Ride bring us together in unique and challenging ways, […]

ALS Canada Research Update, October 2023

ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the October 2023 Research Update, you’ll learn about advances in understanding the presymptomatic stage of ALS, new guidelines for genetic testing and counselling, an experimental cell replacement strategy, new […]

ALS Canada Research Update, July 2023

ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the July 2023 Research Update, you’ll learn about the role genetic factors may play in sporadic ALS, a promising new treatment target, a new tool to measure disease progression […]

Applications open for ALS Canada Kevin Daly Bursary in support of Canadian students touched by ALS

Celebrating ALS community member Kevin Daly, a new bursary of $2,500 supports the financial needs of post-secondary students Toronto, ON – In partnership with the friends and colleagues of ALS community member Kevin Daly, the ALS Society of Canada (ALS Canada) is pleased to announce that applications are now open for the first year of […]

Driving momentum: 2021 Annual Report to the community

ALS Awareness Month is drawing to a close, but our efforts to create a future without ALS continue year-round. Driven by the ALS community, we look to create connection and impact, sharing the progress towards our mission along the way. This includes sharing the ALS Society of Canada’s 2021 Annual Report to the community.    Throughout […]

Collaboration in Pursuit of a Future Without ALS: $1 Million Invested in ALS Research

Toronto – Sustained investment in transformative research is vital to unlocking the mysteries around the causes and progression of ALS, a devastating terminal disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that are moved at will. That is why, together, the Brain Canada […]

ALS Research Update, November 2020

While 2020 has been an unpredictable and challenging year on many fronts, the ALS Canada Research Program continues to observe positive momentum in ALS research. This month you’ll learn about results from two different Phase 2 clinical trials in ALS; the normal function of the C9ORF72 protein; the role of perisynaptic Schwann cells at the […]

ALS Research Update, August 2020

The ALS Canada Research Program is encouraged by the continued momentum seen in ALS research at a time when support for it is more important than ever before. Read about the progress researchers have made in advancing new treatment strategies, understanding the effectiveness of riluzole in the real world; and learning how ALS develops and […]

COVID-19 and the impact of your donor dollars

Because of supporters like you, in addition to the $10,000 match that was offered by ALS Canada’s dear friend, Deirdre, $24,000 was raised for the ALS Canada COVID-19 Urgent Response Fund and it has helped to evolve our programs for people and families living with ALS. How has the COVID-19 Urgent Response Fund made a […]

For What Counts: ALS Canada’s 2019 Annual Report

Now is the time for change. More than 3,000 people and families throughout Canada continue to face the profound emotional, financial, and psychological impact of living with ALS. Their collective experience is core to every action we take and decision we make. And every person affected by this devastating disease is reason enough for our […]

ALS Canada community support services continue to evolve during COVID-19

How support services are changing In the wake of the COVID-19 pandemic, our number one priority was to support the safety of the ALS community and our staff, and as a result, we quickly pivoted to moving all ALS Canada office staff to working remotely from home and made changes to our service model to […]

The virtual Walk to End ALS was a day to remember

I reached out to you on June 1 to invite you to join us in 21 Days to Make a Difference. You embraced the daily activities across social media platforms and openly shared your stories, photos, memories, and experiences. What I saw happen online was a community that came together in anticipation of something big! […]

ALS Canada thanks outgoing Board members for dedication to our shared cause

With great appreciation, ALS Canada acknowledges the significant contributions of three Board members whose terms have come to an end, even as their commitment to the ALS cause continues. Thank you to Ron Foerster, Dr. Angela Genge and Patrick Merz for your gifts of leadership, time and expertise. Dr. Genge and Patrick were both appointed […]

ALS Research Update, May 2020

Welcome to the May 2020 ALS Research Update. During these times of uncertainty, it’s reassuring to know that ALS research developments continue around the globe. This month you’ll learn about progress researchers have made in advancing new treatment strategies; developing laboratory models to better understand ALS; and learning how ALS develops and progresses in the […]

COVID-19 Update

Thanks to our engaged community who serve on our Board, Councils and Committees, we are staying informed and we’ve been able to make timely and effective changes to our programs so we can continue to provide community-based support services at a distance. To help people affected by ALS during the COVID-19 crisis, ALS Canada Regional […]

COVID-19 Update: A message from our CEO

Dear ALS Community, ALS doesn’t stop. Neither will we. We understand what a challenging time this may be for people affected by ALS. The COVID-19 pandemic amplifies the many unknowns and the concerns that come with the realities of the disease. We want you to know we are here for you. Our Regional Managers are reaching […]

ALS Research Update | March 2019

Bringing you the latest news on advancements in ALS research, the ALS Canada Research Program team regularly summarizes what they believe are the most significant discoveries throughout the year. This is the first update for 2019. Researchers identify a potential new biomarker and drug target for ALS Did you know that there is a protein […]

What’s the story with CuATSM

This article was originally posted on the Motor Neurone Disease Association research blog on January 15, 2019. Thank you to the author Dr. Nicholas Cole, Head of Research, as well as the Motor Neuron Disease Association for giving ALS Canada permission to re-post this content.   There has recently been a flood of news stories […]

Wrapping up the holiday giving season

2018 was a momentous year for the ALS community. Discoveries were made that advance our understanding of the disease, clinical trials showed encouraging results, and the first therapy in over 20 years was approved for use in Canada for people living with ALS. Yet in the same year, ALS continued to take countless moments and […]

ALS Canada Strengthens Partnerships Within the Health Charities Sector

ALS Canada is proud to share that Tammy Moore, CEO ALS Canada, has been named Chair of the Board of Directors for the Health Charities Coalition of Canada (HCCC). ALS Canada’s ongoing membership with HCCC helps to bring the perspective of the ALS community to the broader advocacy efforts of health charities in support of […]

A Community Connected

In 2014, the Ice Bucket Challenge gave hope to people and families living with ALS – hope that one day there would be a cure for this terminal disease. With the Ice Bucket Challenge came an immense responsibility to invest donor dollars with care and consideration, and as a result, ALS Canada’s investments have helped […]