ALS Canada’s Board of Directors provides strategic direction and oversight to ensure donor dollars are maximized to serve the organization’s areas of charitable purpose.
These leadership volunteers contribute expertise across various disciplines, a genuine passion for the cause, and a strong desire to make a difference. Below is our Volunteer leadership of the ALS Canada 2023/2024 Board of Directors.
Founder: Arthur J. Hudson
Advisors
Community Services Advisory Council
The Community Services Advisory Council is composed of individuals with a variety of experiences with ALS who provide input and perspectives to support ALS Canada in improving the journey of people and families living with ALS in Ontario.
The Council serves in an advisory capacity to the Board, making recommendations for client service program delivery, community partnerships and provincial advocacy according to the strategic priorities.
Scientific and Medical Advisory Council
The Scientific and Medical Advisory Council provides strategic advice to the Board and management of ALS Canada to ensure all research activities contribute to the vision of ALS Canada, are aligned with the organization’s strategic priorities, are informed by best practices, and are carried out with integrity. The Council also facilitates collaboration within the Canadian ALS research community and supports the Canadian ALS research community’s involvement in international initiatives.
Turgay Akay, PhD
Dalhousie University
Vanina Dal Bello-Haas, PhD, PT
McMaster University
Wendy Johnston, MD
University of Alberta
Paula Trefiak
Patient Community Representative
Gerald Pfeffer, MD, PhD
University of Calgary
Cali Orsulak, BscPharm, BCPS, CDE
Patient Community Representative
Richard Robitaille, PhD
Université de Montréal
Gary Armstrong, PhD
The Neuro, McGill University
Martin Duennwald, PhD
Western University
Hanns Lochmüller, MD, PhD
University of Ottawa
Kerri Schellenberg, MD
University of Saskatchewan
Janice Robertson, PhD
University of Toronto
Robin Parks, PhD
University of Ottawa
Advocacy Committee
The Advocacy Committee provides professional and personal insight to the Board of Directors and to Staff to help advance our advocacy program. This includes advising the organization on which ALS advocacy priorities to bring forward to government and how to achieve results most effectively. The committee also ensures that ALS Canada’s advocacy efforts align with our strategic plan and are undertaken with the utmost integrity. Members of this committee have a variety of experiences including people and families affected by the disease, government relations experts, health sector professionals, and leading academic ALS researchers.
Carmen Cels
Director, People & Culture, Roche Canada
Lisa Flaifel
Vice President, General Medicine, Bayer
Darrell Kane
Person living with ALS, National Account Manager – eCommerce
Kris Noakes
ALS Canada Board member; Community Advocate, living with ALS
Mike Cels
Person living with ALS, Retired from Pharmaceuticals
Dr. Angela Genge, MD, FRCP(C)
Director of the ALS Clinic and the Clinical Research Unit, The Neuro
Stephanie Mazzei
Therapeutics consultant, diagnostics, and digital health in cancer care
Dr. Karin Schnarr
Director, MBA Programs; Associate Professor, Policy & Law at the Lazaridis School of Business & Economics at Wilfrid Laurier University
ALS Canada Team
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