Privacy Policy


The purpose of the policy is:

  • To ensure that ALS Canada identifies and complies with required legislation for the privacy and protection of personal information
  • To assure stakeholders and the public that ALS Canada recognizes the right of all individuals to privacy and pledges to protect it and takes appropriate steps to safeguard the information
  • To provide clarity with respect to how ALS Canada collects and utilizes personal information

ALS Canada is committed to protecting the privacy of the people we serve including clients and families, donors, stakeholders, volunteers, and employees. We value the trust placed in us by the public and recognize that maintaining this trust requires us to be transparent and accountable in how we treat the information that has been given to us.

Collection and Utilization of Information

  • ALS Canada only collects personal information that has been provided voluntarily and with consent.
  • Consent may be collected on a form, within a letter, orally or in some instances, consent will be implied. You have the right to withhold your consent if you do not wish ALS Canada to collect your personal information, although it may hinder our ability to provide resources or ongoing communication.
  • All personal information is kept confidential and secure.
  • ALS Canada will only collect information that is necessary and will only maintain information for the time it is required to utilize the information or to adhere to legislation requirements.
  • ALS Canada may share your information with a third party to facilitate provision of services including client services, direct response fundraising, processing donations and credit card transactions.
  • On occasion, ALS Canada will trade names and mailing address information with other charitable organizations, through an exchange list brokerage. This only applies to active donors who give through our direct mail program. Any donors who wish to have their name removed from our trade list can do so at any time upon request.
  • Examples of information and reasons for collection:
    • In order to provide services to a person affected by ALS, a name and contact information will be collected. This information will be used to facilitate the provision of services including in-person home visits, virtual visits using technology, to connect with the health care teams, or to coordinate equipment requirements with third-party providers.
    • Donors must provide their name, address and credit card or bank information to process online donations and request a tax receipt.
    • As a visitor interacts on our website, data will be collected that identifies your computer and tracks use of the website to provide analytics of usage and to enhance the user experience. This information does not identify a specific user.
  • If a contact address has been provided, ALS Canada may send periodic mailings with information about new programs and services, requests for support, fundraising opportunities, or upcoming events, where consent exists for such purposes.
  • Permission to be contacted may be withdrawn at any time by contacting ALS Canada by telephone or in writing (see Contacts below) and providing the name, email address or physical address used in the mailings.

Protecting Information

  • ALS Canada uses Secure Socket Layer (SSL) encryption technology to ensure the integrity and privacy of the personal and credit card information provided online, and implements safeguards for financial information provided by mail, phone, or in person.
  • ALS Canada maintains records of all contributions to the Society. All information is kept private and confidential and is stored in a secure location accessible only by authorized staff.
  • Electronic records are stored in a secure hosted, cloud environment in Canada and protected with secure access. Computers and phones with data access are password protected.

Access to Information, Inquiry, Complaint Process

Any person whose personal information is held by ALS Canada has the right to know of the existence of such personal information and to have access to that information to ensure that it is accurate and the right to complain if that personal information is improperly collected, used, stored, or disclosed.

Any such requests for information or complaints can be directed to:

Privacy Officer
ALS Society of Canada
393 University Avenue
Suite 1701
Toronto, ON M5G 1E6
1-800-267-4ALS (4257) or 416-497-2267

We will provide acknowledgement of receipt of your inquiry/concern, and will provide either a full response, or with a reason for a further extension, within 30 calendar days.

AODA Accessibility Policy

ALS Canada is committed to improving accessibility and ensuring that the following policies and practices are in place, as required by the Accessibility for Ontarians with Disabilities Act, 2005 (“AODA”). The organization is committed to ensuring accessible service is part of our overall objectives of providing excellent client service and promoting diversity.

Download our AODA Accessibility Policy here.