2017 Annual Report to the community
In 2014, the Ice Bucket Challenge gave hope to people and families living with ALS – hope that one day there would be a cure for this terminal disease. With the Ice Bucket Challenge came an immense responsibility to invest donor dollars with care and consideration, and as a result, ALS Canada’s investments have helped to make great strides in the areas of research and awareness.
Your commitment to funding supports research grants that enable Canada’s ALS research community to advance scientific discovery in support of new treatments. By helping our community navigate available healthcare options and provide access to support services we aim to empower people to make informed decisions about ALS. Through advocacy we keep the pressure on government to better meet the unique challenges and needs of our ALS community. Every day across Ontario, your commitment to ALS Canada helps families living with the reality of an ALS diagnosis to be better supported in the community.
Even in the face of a devastating disease, our ALS community is a resilient and hopeful one, and together, we have the power to make change happen. The 2017 Annual Report is a celebration of you -our supporters and allies – which illustrates the impact of your generosity.
Here are just a few highlights made possible by you over the last year:
2, 987 pieces of equipment that improve quality of life were delivered free of charge
The first 200 Canadian DNA profiles (of a target of 1,000) were contributed to Project MinE with funding from ALS Canada and matching funds from Brain Canada
ALS Canada attended all three ALS Caucus meetings that took place in 2017, with topics ranging from the need for equitable and affordable access to new therapies, to the importance of dedicated, ongoing research investment to bring clinical trials and emerging therapies to Canada