People living with ALS require increasing levels of care as their disease progresses. Most of the time, responsibility for personal care is taken on by caregivers such as family and friends.
Caring for a person with ALS is an important but demanding role. It can be stressful and emotionally exhausting. Caregivers may be at risk for stress-related health problems, burnout, and compassion fatigue, and can be at increased risk when they experience a lack of support, isolation, or financial difficulties. There are ways to help reduce these risks.
It is important for caregivers to feel well supported and when possible, take time for self-care.
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