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People living with ALS require increasing levels of care as their disease progresses. Most of the time, responsibility for personal care is taken on by caregivers such as family and friends.

In early March, members of the ALS community joined ALS Canada in Ottawa for two days of advocacy training and meetings with politicians and other government officials.

This glossary contains a list of scientific and medical terms and definitions that are relevant to amyotrophic lateral sclerosis (ALS).

In Canada, what the provincial health care systems provide does not always match the needs of people living with ALS. This statement rings true for Ontario, where the current ALS care and support landscape in the province presents people living with ALS with significant challenges that demand immediate action.

Today, February 28, marks Rare Disease Day. A day that provides the ALS Society of Canada (ALS Canada) a chance to bring awareness to the disease alongside other potentially lesser-known diseases to work together towards equity in health care, and access to diagnosis and therapies.

The ALS Society of Canada (ALS Canada) is excited to welcome Dr. Leslie Green, Jude Groves, and Kris Noakes to our Board of Directors. Comprised of leadership volunteers with a variety of backgrounds and expertise, our Board ensures ALS Canada is well-governed and donor dollars are maximized to serve our charitable purpose. 

With gratitude and appreciation, the ALS Society of Canada (ALS Canada) acknowledges the significant contributions of four Board members whose terms have come to an end. Thank you to Norma Beauchamp, Catherine Bélanger, Josette Melanson, and Jim Mitrakos for your leadership, insights, and dedication.

ALS Awareness Month is drawing to a close, but our efforts to create a future without ALS continue year-round. Driven by the ALS community, we look to create connection and impact, sharing the progress towards our mission along the way.

Discovery Grant will fuel an interdisciplinary mindfulness study for people living with ALS and their caregivers.

Earlier this year, manufacturer Amylyx announced that it plans to pursue Health Canada approval for its AMX0035 therapy. We’ve updated the blog post we first published back in 2018 about how new drugs become accessible in Canada to help orient you to the steps involved, their purpose, the milestones along the way and the timelines involved.

In partnership with Brain Canada Foundation, the ALS Canada Research Program awards eight Discovery Grants.

With the 2019 federal election campaign underway, are you curious about what the parties are saying about the issues that could affect Canada’s ALS community? ALS Canada asked each of the major parties what they would do, if elected, to help people and families affected by ALS.

Every day, more than 3,000 people and families throughout Ontario and Canada live with the realities of ALS, a devastating disease that takes away dreams, abilities, and lives. But for all ALS takes, it cannot take away our shared desire for a future without this disease.