For Caregivers
ONTARIO ONLY: Support Groups
Our support groups provide connection and community for those affected by ALS.
For Caregivers
Community Leads
Community Leads provide personalized support, information, and connections to resources for people affected by ALS.
For Newly Diagnosed
Information and Support: Clinical Trials
Clinical Trials are a critical part of developing new ALS treatments. Learn more about how clinical trials work, find trials in Canada, get your questions answered, and find further resources.
Living with ALS
Feeding tubes
A feeding tube, also known as a “g-tube”, is a device that can be used to support the nutritional needs of a person living with ALS.
Advocacy
The All-Party Parliamentary ALS Caucus
Advocacy
Tell the federal government to invest in ALS research
Advocacy
Canadian Collaboration to Cure ALS
Advocacy
Welcome to Parliament: A Message from Canada’s ALS Community
Advocacy
Ontario Provincial Program: Thank you letter-writing campaign
Advocacy
Federal Election 2025
Raising our voices and engaging with candidates during the election is a critical way to keep ALS on the radar.
Advocacy
Ontario Provincial ALS Program: A proactive solution for enhancing ALS care in Ontario
Advocacy
Ontario Election 2025
Advocating for ALS Care in Ontario
Advocacy
ALS Canada Advocacy in a Box Toolkit
A resource that supports and empowers advocacy efforts aimed at improving the lives of people living with ALS (Amyotrophic Lateral Sclerosis).
About ALS
ReferALS Early Referral Tool
The ReferALS Tool helps healthcare professionals recognize potential signs and symptoms of ALS and supports earlier referral to a multidisciplinary ALS clinic. Early referral can help individuals access specialized care, support services, clinical trials, and research opportunities sooner in their journey.
Research
Research Glossary
This glossary contains a list of scientific and medical terms and definitions that are relevant to amyotrophic lateral sclerosis (ALS).
Advocacy
How new drugs become approved and accessible to Canadians
Earlier this year, manufacturer Amylyx announced that it plans to pursue Health Canada approval for its AMX0035 therapy. We’ve updated the blog post we first published back in 2018 about how new drugs become accessible in Canada to help orient you to the steps involved, their purpose, the milestones along the way and the timelines involved.
Advocacy
Understanding the Issues: 2019 Federal Election Health Commitments
With the 2019 federal election campaign underway, are you curious about what the parties are saying about the issues that could affect Canada’s ALS community? ALS Canada asked each of the major parties what they would do, if elected, to help people and families affected by ALS.
Fundraising & Events
How you can fundraise for ALS Canada through Facebook
In late 2018, Facebook began offering the option for Canadians to create fundraisers for nonprofit organizations or for personal causes. Since then many of you have reached out to us with questions about how these giving options can be used to support ALS Canada. Keep reading….