New
For Newly Diagnosed
Information and Support: Clinical Trials
Clinical Trials are a critical part of developing new ALS treatments. Learn more about how clinical trials work, find trials in Canada, get your questions answered, and find further resources.
New
For Newly Diagnosed
FAQ: ALS Research
New to ALS research? Explore answers to common questions about clinical trials, what ALS researchers are studying, treatment development, and where research funding is going.
For Newly Diagnosed
First steps after an ALS diagnosis
Receiving an ALS diagnosis is devastating for all involved. It is normal to feel lost, frightened and unsure of what to do next or who to turn to.
About ALS
ALS Guide: A resource for people living with ALS
Receiving a diagnosis of ALS can be overwhelming. You may experience many different emotions, and you may feel the need to learn more about how this complex disease will affect you.
About ALS
ReferALS Early Referral Tool
The ReferALS Tool helps healthcare professionals recognize potential signs and symptoms of ALS and supports earlier referral to a multidisciplinary ALS clinic. Early referral can help individuals access specialized care, support services, clinical trials, and research opportunities sooner in their journey.
For Newly Diagnosed
Communicating an ALS diagnosis
There is no easy way to tell family and friends you have been diagnosed with ALS. And there is no right or wrong way, either. Individual personalities, family circumstances, and the degree to which the symptoms are visible can all play a role in when, how, and with whom to share the news.