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ALS Canada Genetics Glossary
Glossary of Genetic Terms
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Clinical Trials Frequently Asked Questions
The ALS Society of Canada’s (ALS Canada) vision is a future without ALS. To achieve this vision, new treatments that can help with symptom management and slow down and someday stop the progression of amyotrophic lateral sclerosis (ALS) need to undergo clinical trials on humans to ensure that they are both safe and effective before being approved for widespread availability.
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ALS Canada Gene Hub
The ALS Society of Canada (ALS Canada) is committed to a future where anyone living with ALS, or with a known genetic risk of ALS, understands how genetics may impact them. We aim to provide accurate and relevant information, as well as pathways to action for those who wish to access genetic care.
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ALS and genetics
In familial ALS, an inherited genetic mutation causes ALS. Many different genetic mutations have been linked to ALS, and not all families have the same mutation as the cause of their disease.
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Guide to Reading Research Papers
From unravelling abstracts to diving deep into discussions, this resource will help you feel more confident the next time you dig into a complicated ALS research paper.
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ALS Canada Research Glossary
This glossary contains a list of scientific and medical terms and definitions that are relevant to amyotrophic lateral sclerosis (ALS).
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Canadians living with ALS unite to CAPTURE ALS
Amyotrophic lateral sclerosis (ALS) is a complex disease with varying symptoms and severity for people affected. Due to its heterogeneity, diagnosing the disease can be challenging and finding effective treatments can also be difficult.
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Frequently Asked Questions – ALBRIOZA (AMX0035)
What is ALBRIOZA (AMX0035)? ALBRIOZA (sodium phenylbutyrate/ursodoxicoltaurine) is indicated for the treatment of people living with amyotrophic lateral sclerosis (ALS).
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Bonus Session | 2021 ALS Canada Research Forum
In this special bonus session from the 2021 ALS Canada Research Forum, Dr. Martin Duennwald, from Western University, gave a talk entitled “Hsp90 and its co-chaperones modulate protein misfolding in ALS.”
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ALS Canada Webinar: Update on ALS clinical trials in Canada and around the globe
Dr. David Taylor, VP of Research, hosted a webinar on June 15, 2021 exploring the current state of clinical trials globally and in Canada, where he also addressed some key questions around specific studies and clinical trials in general.
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Oh the humanity: A look at modeling human ALS in the lab
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Stay on target: Moving promising avenues closer to the clinic
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ALS Top Model: Runway to success
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Can lower animal models take us higher? A look at worm, fish, flies and more in ALS
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ALS Awareness Month 2020: Update on global ALS clinical trials
Dr. David Taylor, VP of Research, hosted a webinar on June 16, 2020 exploring the current state of clinical trials in Canada and worldwide.
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Creating a foundation for future therapies: The need for antibody validation in ALS research
ALS Canada donor-funded research published in the open-access scientific journal eLife.
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The ALS Ice Bucket Challenge and the changed landscape of ALS research in Canada
This webinar is about the impact of donations and the game-changing research that the ALS Ice Bucket Challenge made possible.
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An update on clinical trials in Canada and around the world | Part two
This webinar is part two of a two part series that focuses on clinical trials for ALS in Canada and across the world.