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In familial ALS, an inherited genetic mutation causes ALS. Many different genetic mutations have been linked to ALS, and not all families have the same mutation as the cause of their disease.

Glossary of Genetic Terms

The ALS Society of Canada’s (ALS Canada) vision is a future without ALS. To achieve this vision, new treatments that can help with symptom management and slow down and someday stop the progression of amyotrophic lateral sclerosis (ALS) need to undergo clinical trials on humans to ensure that they are both safe and effective before being approved for widespread availability.

The ALS Society of Canada (ALS Canada) is committed to a future where anyone living with ALS, or with a known genetic risk of ALS, understands how genetics may impact them. We aim to provide accurate and relevant information, as well as pathways to action for those who wish to access genetic care.

From unravelling abstracts to diving deep into discussions, this resource will help you feel more confident the next time you dig into a complicated ALS research paper.

This glossary contains a list of scientific and medical terms and definitions that are relevant to amyotrophic lateral sclerosis (ALS).

What is ALBRIOZA (AMX0035)? ALBRIOZA (sodium phenylbutyrate/ursodoxicoltaurine) is indicated for the treatment of people living with amyotrophic lateral sclerosis (ALS).

Ce webinaire porte sur l’incidence des dons et sur les recherches révolutionnaires rendues possibles grâce à l’Ice Bucket Challenge.

This is an archived presentation from ALS Canada’s 3rd annual Virtual Research Forum presented by Dr. David Taylor, Dr. Angela Genge, and Dr. Christine Vande Velde.  

A new way of looking at experimental therapy for ALS.

Using stem cells from adult blood to recreate individuals’ ALS in a dish.

Using zebrafish and cutting edge technology to create a better way of studying ALS in animals.

Using identical twins to understand environmental factors in ALS onset and progression.

A multidisciplinary initiative with a primary goal of promoting and prolonging safe driving for patients with ALS.

Using Brain Computer Interface Technology to turn thoughts into computer commands.

A five year research project, searching for biomarkers of ALS and leaving a legacy resource to improve diagnosis and understanding of ALS for the future.

A multi-national initiative, establishing a global resource of human data that will enable scientists worldwide to understand the genetic signature that leads someone to develop ALS.

Dr. François Gros-Louis provided an overview on the work his research lab is doing with ALS at l’Université Laval, using skin as an alternative to brain tissue to identify molecular biomarkers in ALS.