Published in Advocacy on September 15, 2021
Tags: 2021 Federal Election, advocacy, Election
The 2021 federal election is wrapping up in less than a week! With Election Day scheduled for Monday, September 20, 2021, now more than ever, it’s important to know the issues that matter to you before you cast your vote. ALS Canada reached out to each major political party to get more details about how […]
Published in Advocacy, Fund Development on June 24, 2019
Tags: advocacy, als cure, Donate to ALS, donating to ALS, edaravone, find a cure for ALS, fundraising, research funding, Research update
Every day, more than 3,000 people and families throughout Ontario and Canada live with the realities of ALS, a devastating disease that takes away dreams, abilities, and lives. But for all ALS takes, it cannot take away our shared desire for a future without this disease. We rely on you – our generous donors – […]
Published in Events, Walk To End ALS on June 20, 2019
Tags: 2019-personal-stories, advocacy, ALS, ALS awareness, ALS Awareness Month, community, families with ALS, funding als research
Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk without assistance. “Now that I am living with ALS, the roles are a bit reversed,” […]
Published in Advocacy on April 9, 2018
Tags: advocacy, edaravone, Health Canada, MT Pharma
With the news that manufacturer MT Pharma is pursuing the regulatory channels necessary to bring the drug edaravone to Canada, the ALS community in this country finds itself facing the possibility of a second treatment option nearly 20 years after riluzole was approved. But how does any new drug become approved in Canada – and […]
Published in Stories on April 4, 2017
Tags: advocacy, ALS, als stories, care, caregiving, families with ALS, living with ALS
Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some time to connect with us recently to share his experience as his mother’s caregiver for […]
Published in Stories on August 16, 2016
Tags: advocacy, ALS, ALS awareness, community
Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS. As someone who spent much of his adult life in a role […]
Published in Advocacy on January 4, 2016
Tags: advocacy, ALS, ALS awareness, policy, support
We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some […]
