Published in Events, Stories on November 16, 2023
Tags: ALS, buck-a-puck for als, fundraising, stories
Small but mighty, the team behind Buck-A-Puck for ALS doesn’t plan on backing down from their dream of hitting their $1 million fundraising goal. George Daly, Joshua Lopez, and Liam Muffitt may look like your average hockey-loving teenage boys, but they’re taking their passion for the sport one step further to change what it means […]
Published in Research on October 27, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the junior researchers behind the 2022 ALS Canada – Brain Canada Trainee Awards Dr. Hussein Ghazale is the recipient of a $165,000 ALS Canada – Brain Canada 2022 Trainee Award. After finishing his PhD in France, Dr. Ghazale moved to Canada to work with Dr. Carol Schuurmans at Sunnybrook Research Institute. Her team examines […]
Published in Research on October 23, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the students who received the 2022 ALS Canada – Brain Canada Doctoral Awards PhD student Lucia Meng Qi Jadon (previously Liao) is the recipient of a $75,000 ALS Canada – Brain Canada 2022 Trainee Award. She will use the funding to investigate whether a newly discovered tag on TDP-43 might have an important role […]
Published in Research on October 20, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the students behind the 2022 ALS Canada – Brain Canada Trainee Awards Charlotte Manser is the recipient of a $75,000 ALS Canada – Brain Canada 2022 Trainee Award. As a PhD student at the University of Ottawa, she investigates how ALS-linked genes might contribute to the loss of normal stress granule formation. When our […]
Published in Research on October 16, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the junior researchers who received the 2022 ALS Canada – Brain Canada Trainee Awards Donovan McDonald is the recipient of a $75,000 ALS Canada – Brain Canada 2022 Trainee Award. As a PhD student, he investigates how the function of tRNA could contribute to ALS disease processes. Donovan came to Canada from the Bahamas. […]
Published in Research on October 11, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet Dr. Philip McGoldrick, recipient of the 2022 ALS Canada – Brain Canada Career Transition Award Dr. Philip McGoldrick, a researcher at the Tanz Centre for Research in Neurodegenerative Diseases at the University of Toronto, is the 2022 recipient of a $250,000 ALS Canada – Brain Canada Career Transition Award. This award helps launch talented […]
Published in Research on September 29, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Could protecting the axon represent a promising treatment strategy for ALS? Award: $300,000 Collaborators: Dr. Gary Armstrong, McGill University Dr. Alex Parker, at the Centre de recherche du CHUM, Université de Montreal, is one of the first two recipients of the newly introduced three-year, $300,000 […]
Published in Research on September 25, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Could improving the mechanisms of toxic protein disposal in motor neurons become a future treatment strategy? Award: $125,000 Collaborators: Dr. Martin Duennwald, Western University, and Dr. Elizabeth Meiering, University of Waterloo Dr. Gary Shaw is a biochemist at Western University and one of the […]
Published in Research on September 22, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Will this new way of looking at certain protective proteins better explain their role in ALS? Award: $125,000 Collaborator: Dr. Heather D. Durham, McGill University As one of the 2022 ALS Canada-Brain Canada Discovery Grant awardees, she gets to take her expertise and apply […]
Published in Research on September 18, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects What role does its sister protein play when restoring G3BP1 levels as a potential ALS treatment strategy? Award: $125,000 Collaborators: Dr. Marlene Oeffinger, Institut de recherches cliniques de Montréal (IRCM) Dr. Christine Vande Velde is a cellular biologist at the Centre de recherche […]
Published in Research on September 15, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Can this routine and inexpensive procedure have a neuroprotective effect in ALS? Award: $125,000 Collaborators: Dr. Minh Dang Nguyen, University of Calgary, and Dr. Deepak Kaushik, Memorial University of Newfoundland Dr. Carlos Rodrigo Camara-Lemarroy is an early-career researcher and clinical neurologist based in Canada at […]
Published in Research on September 11, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Can computational methods aid in the design of key antibodies for the diagnosis and treatment of ALS? Award: $125,000 Dr. Maria Stepanova, a physicist at the University of Alberta, is one of nine 2022 ALS Canada-Brain Canada Discovery Grant recipients. She works closely with […]
Published in Research on September 8, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Could this new 3D cell culture model help researchers better predict disease progression in ALS? Award: $125,000 Collaborators: Dr. Yasser Iturria-Medina, McGill University When Dr. Thomas Durcan, director of The Neuro’s Early Drug Discovery Unit (EDDU), found out his team had been awarded a […]
Published in Research on September 4, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Could this new mouse model help to understand the potential role of retroviruses in ALS and lead to new treatments? Award: $125,000 Collaborators: Dr. Jody Haigh, University of Manitoba, and Dr. Domenico Di Curzio, St. Boniface Hospital Albrechtsen Research Centre When Dr. Renée Douville […]
Published in Research, Stories on September 1, 2023
Tags: ALS, ALS Canada Research Program, als-research-profile, funding als research
Meet the researchers behind the winning 2022 Discovery Grant projects Could the study of neuromuscular junction proteins aid in the development of essential biomarkers? Award: $300,000 Collaborators: Dr. Danielle Arbour and Dr. Roberta Piovesana at the Université de Montréal, and Dr. Robert Bowser, Barrow Neurological Institute Dr. Richard Robitaille, at the Université de Montréal, […]
Published in Stories on December 23, 2020
Tags: ALS, community, stories
What is community? It’s where we find people with whom we can share experiences. Community is where we are relentless in our efforts to change ALS forever. It’s where we come together and use our voice to fight for each other. To build resilience. Community is where we come together to connect meaningfully. A […]
Published in Research, Update on November 25, 2020
Tags: ALS, research, Research update
While 2020 has been an unpredictable and challenging year on many fronts, the ALS Canada Research Program continues to observe positive momentum in ALS research. This month you’ll learn about results from two different Phase 2 clinical trials in ALS; the normal function of the C9ORF72 protein; the role of perisynaptic Schwann cells at the […]
Published in Fund Development, Giving Tuesday, Stories on November 24, 2020
Tags: ALS, ALS awareness, als stories, community, Donate to ALS, donating to ALS, fundraising, giving, giving back, holidays, living with ALS, support
Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight of the world on my shoulders by telling me I have ALS, and the next […]
Published in Fund Development, Stories on November 3, 2020
Tags: ALS, ALS awareness, als stories, care, caregiving, community, Donate to ALS, donating to ALS, families with ALS, find a cure for ALS, finding a cure for als, fundraising, giving, giving back, living with ALS, support
Mark Vivarais was almost in tears as he walked back to his wife, Sandra, from a washroom at an outdoor outlet mall in Florida. He’d been stuck in there for half an hour, struggling to pull himself up from the low toilet seat. “That’s when it hit me,” Sandra recalled. “Oh my god, this is […]
Published in Fund Development, Research on October 30, 2020
Tags: ALS, ALS Canada Research Program, ALS research, funding als research, fundraising, research, research community, research funding, Virtual Research Forum
You don’t need us to tell you that 2020 has thrown everyone and everything for a loop. A few months into the year, we all found ourselves having to adapt very quickly to mitigate the unknowns of the COVID-19 pandemic. For ALS Canada, that meant cancelling the 2020 edition of our annual ALS Canada Research […]
Published in Events, Fund Development on September 28, 2020
Tags: ALS, community engagement, fundraising, Get Involved, giving, giving back, support
Every year, hundreds of community events take place across Ontario, raising critical awareness and funds toward a future without ALS. With the pandemic changing the way we work, dine and live, our dedicated community is adapting how they fundraise, too. We’ve compiled a list of some of the amazing and creative ways ALS Canada event […]
Published in Research, Update on August 31, 2020
Tags: ALS, ALS research, research, research community, research funding, Research update
The ALS Canada Research Program is encouraged by the continued momentum seen in ALS research at a time when support for it is more important than ever before. Read about the progress researchers have made in advancing new treatment strategies, understanding the effectiveness of riluzole in the real world; and learning how ALS develops and […]
Published in Fund Development, Update on August 27, 2020
Tags: ALS, community, community engagement, Donate to ALS, donating to ALS, fundraising, giving, giving back
Because of supporters like you, in addition to the $10,000 match that was offered by ALS Canada’s dear friend, Deirdre, $24,000 was raised for the ALS Canada COVID-19 Urgent Response Fund and it has helped to evolve our programs for people and families living with ALS. How has the COVID-19 Urgent Response Fund made a […]
Published in Events, Fund Development, Research, Stories, Update, Walk To End ALS on June 25, 2020
Tags: ALS, ALS awareness, ALS Awareness Month, Donate to ALS, donating to ALS, fundraising, walk to end als
I reached out to you on June 1 to invite you to join us in 21 Days to Make a Difference. You embraced the daily activities across social media platforms and openly shared your stories, photos, memories, and experiences. What I saw happen online was a community that came together in anticipation of something big! […]
Published in Events, Stories, Walk To End ALS on June 19, 2020
Tags: ALS, ALS awareness, ALS Awareness Month, als stories, community, Donate to ALS, families with ALS, living with ALS, walk to end als
Charmaine Loverin, who was diagnosed with ALS last year, has stayed positive through tremendous change and upheaval imposed by the disease, especially during the COVID-19 crisis. She left her home and relocated to Belleville to live with her sister, Michelle, who reached out with “open arms.” After the move, Charmaine returned to Toronto on a […]
Published in Events, Walk To End ALS on June 16, 2020
Tags: ALS, ALS awareness, ALS Awareness Month, community, walk to end als
This Sunday (June 21) at 11:00am ET, you are invited to join ALS Canada’s Walk to End ALS virtual finish line – our biggest online celebration ever! What is the virtual finish line? For one hour, we’re taking to the virtual airways for a live-streaming celebration unlike anything you’ve ever seen before. There will be […]
Published in Events, Stories, Walk To End ALS on June 16, 2020
Tags: ALS, ALS awareness, ALS Awareness Month, als stories, caregiving, community, Donate to ALS, donating to ALS, families with ALS, fundraising, living with ALS, walk to end als
ALS shatters dreams no matter when it strikes. For Deane Gorsline, 31, and his wife, Danielle, living with ALS means letting go of a lifetime of dreams. Focusing on the present helps them stay positive, whether it’s enjoying precious time with their new puppy, Trigger, or supporting the ALS community they belong to by joining […]
Published in Events, Stories, Walk To End ALS on June 12, 2020
Tags: ALS, ALS awareness, ALS Awareness Month, community, families with ALS, living with ALS, walk to end als
Marla Dahlke says she was like “a deer in the headlights” when doctors told her she had ALS last year. She’s since had time to process that information, adapt to her new reality, and reconnect with her resilient inner voice. “You can only feel sorry for yourself for so long and even you get sick […]
Published in Events, Stories, Walk To End ALS on June 9, 2020
Tags: ALS, ALS awareness, ALS Awareness Month, als stories, caregiving, community, Donate to ALS, donating to ALS, families with ALS, giving, giving back, living with ALS, walk to end als
Jocelyne Gall is doing her best to support her dad, Bill, who was diagnosed with ALS in July 2018. As the only child of divorced parents, she is the only family member attending to her dad’s needs – and with three young children of her own, she has a lot to manage. While her situation […]
Published in Events, Walk To End ALS on June 8, 2020
Tags: ALS, ALS awareness, ALS Awareness Month, community, community engagement, fundraising, walk to end als
Haven’t yet decided how you’re going to do the Walk to End ALS in your own way on Sunday, June 21? You need not look further than the Ice Bucket Challenge to know that the ALS community is creative and resilient, so they’ve got you covered! Here are just a few innovative ways our community […]
Published in Events, Stories, Walk To End ALS on June 5, 2020
Tags: ALS, ALS Awareness Month, ALS Canada Research Program, als stories, caregiving, community, Donate to ALS, donating to ALS, families with ALS, living with ALS, walk to end als
Even a high level of awareness about ALS cannot fully prepare anyone for what it takes to navigate the changes that occur as the disease progresses. Charlotte and Bob Brethour have faced many difficult hurdles, but they still appreciate every day they share together, “even when the best-laid plans have gone awry,” says Charlotte. “We’re […]
Published in Events, Walk To End ALS on May 28, 2020
Tags: ALS, ALS Awareness Month, walk to end als
The countdown is on! ALS Awareness Month kicks off June 1 and this year it’s all about bringing us together online so that we can continue to build community and create visibility, even while we distance physically. Because even though the world is different right now, one thing hasn’t changed – WHY you want to […]
Published in Volunteers on April 24, 2020
Tags: ALS, ALS Canada Research Program, community, National Volunteer Week, volunteering
ALS doesn’t stop and neither will we. Even during these unprecedented times, ALS Society of Canada volunteers continue to give their time and skills to support people and families living with ALS. Over the past week, in recognition and celebration of National Volunteer Week 2020 #NVW2020, you’ve had the chance to get to know some of our […]
Published in Stories, Walk To End ALS on September 12, 2019
Tags: 2019-personal-stories, ALS, als cure, als stories, community, community engagement, Donate to ALS, families with ALS, find a cure for ALS, living with ALS, support, walk to end als
When Shelly Gregory first noticed her speech was slurred two years ago, she drove herself to the hospital in Belleville thinking she was having a stroke. Eight months later, in May 2018, she learned she had bulbar onset amyotrophic lateral sclerosis – a form of ALS that first affects people from the neck up. Since […]
Published in Stories, Walk To End ALS on September 5, 2019
Tags: 2019-personal-stories, ALS, als stories, caregiving, community engagement, families with ALS, living with ALS, motor neuron disease, walk to end als
It wasn’t until her own diagnosis that Jackie learned ALS can be passed on through generations. Jackie Pasch, 55, was diagnosed with familial ALS almost a year ago. Shortly after, she lost the use of her left arm and developed difficulty breathing necessitating the use of a BiPAP machine at night to help her breathe […]
Published in Stories, Walk To End ALS on September 3, 2019
Tags: 2019-personal-stories, ALS, ALS awareness, als stories, Every August Until A Cure, funding als research, living with ALS, walk to end als
Until he was diagnosed with ALS in 2016, Alan Medcalf spent his adult life “in love with movement.” He was a snowboarder, cross-country skier, unicyclist, cyclist and competed as a runner, swimmer and triathlete. After a second hip replacement he cycled coast to coast across Canada in 2000 and logged over 100,000 km in the […]
Published in Fund Development, Stories on August 23, 2019
Tags: 2019-personal-stories, ALS, ALS research, als stories, caregiving, Donate to ALS, Every August, Every August Until A Cure, families with ALS, fundraising, Ice Bucket Challenge, support
Five years ago, when the ALS Ice Bucket Challenge went viral in 2014, Mario knew very little about ALS, and had no idea how it would affect his life. Because of a co-worker whose dad was living with ALS, Mario completed the ALS Ice Bucket Challenge. “Once I got tagged in a post there was […]
Published in Advocacy, Fund Development, Stories on July 26, 2019
Tags: ALS, ALS awareness, community, community engagement, Donate to ALS, donating to ALS, finding a cure for als, funding als research, fundraising, giving
Last spring, Mike Leech, 59, approached his plant manager to request a 2-month leave from work to complete a bike ride across Canada for charity. An avid cyclist, he dreamed of cycling coast to coast but he wanted to make it more than just a physical challenge. He wanted to raise awareness and money for […]
Published in Events, Walk To End ALS on June 20, 2019
Tags: 2019-personal-stories, advocacy, ALS, ALS awareness, ALS Awareness Month, community, families with ALS, funding als research
Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk without assistance. “Now that I am living with ALS, the roles are a bit reversed,” […]
Published in Events, Walk To End ALS on May 23, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, motor neuron disease, treating als, walk to end als
For the past 40 years, Dale Hodgins has been saving lives as a paramedic and volunteer firefighter in Kingston, Ontario. In December 2018, he was diagnosed with ALS – a disease he was already familiar with through his work. As far back as the 80s and 90s, Dale remembers driving people living with ALS home […]
Published in Events, Walk To End ALS on May 15, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, finding a cure for als, finding a cure for motor neurone disease, motor neuron disease, motor neurone disease cure, treating als, walk to end als
According to Kevin, there’s one word that sums up ALS: a thief. “ALS is a thief – and a remorseless one at that,” he explains in writing. Now that he can no longer speak, he uses eye gaze technology to type messages with his eyes – his only method of communicating. “The sooner we can arrest […]
Published in Research on July 21, 2017
Tags: ALS, ALS research, research, research funding
This interview was originally posted on the Hitfar website in February 2017. Thank you to Hitfar for giving ALS Canada permission to re-post this content. Could you start by explaining the disease and its effects? ALS is a disease where the living wires, called motor neurons, that connect your brain to your muscles die. This means […]
Published in Support & Services on July 18, 2017
Tags: ALS, support
Updated November 28, 2017 As we mentioned in an earlier post, ALS Canada has made some improvements to our service offering with the goal of strengthening the support we offer to people and families living with ALS in Ontario. In mid-July, we shared some of the enhancements made to our equipment program. Another important area […]
Published in Stories, Volunteers on April 29, 2017
Tags: ALS, community, giving back, volunteering
National Volunteer Week: Tara Wingrave With two 18 year-old daughters, a 19 year-old son, and a highly demanding job, life is hectic, but that won’s stop me from making the time to organize the Barrie WALK for ALS again this year. It’s something I feel passionate about, and it’s one of the most important ways […]
Published in Stories, Volunteers on April 28, 2017
Tags: ALS, community, giving back, volunteering
National Volunteer Week: Jacqui Devine They always say ALS is rare, so it’s surprising how many times you hear about people who have been diagnosed with the disease. In 2012, I was working as a personal support worker and my favourite client was living with ALS. Since I knew very little about it, I decided […]
Published in Stories, Volunteers on April 24, 2017
Tags: ALS, giving back, leadership, volunteering
National Volunteer Week: Geneviève Bertrand Many of us who contribute to the work of ALS Canada as volunteers have a personal connection to ALS, whether we are living with the disease ourselves, or supporting or remembering a close family member, friend, colleague or acquaintance. We are spurred on by the hope for a cure, and want […]
Published in Stories on April 4, 2017
Tags: advocacy, ALS, als stories, care, caregiving, families with ALS, living with ALS
Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some time to connect with us recently to share his experience as his mother’s caregiver for […]
Published in Stories on February 14, 2017
Tags: ALS, caregiving, living with ALS, support
This Valentine’s Day, we would like to highlight Trevor and Jennifer’s story about finding love while living with ALS. – Trevor was my first love in high school. Although short term, the strong connection we had was never forgotten. We lost track of each other but reconnected again after 28 years on Facebook in 2015. […]
Published in Stories on December 19, 2016
Tags: ALS, ALS awareness, community, giving, living with ALS
When a friend or loved one is living with ALS, the holiday season can be a difficult time. This is certainly true for the Peacock family ever since husband and father Jeff was diagnosed with ALS three years ago. This year, Jeff won’t be able to decorate the tree, hand out gifts or enjoy dinner […]
Published in Research on November 23, 2016
Tags: ALS, ALS Canada Research Program, ALS research, genetic research, research, research community, research funding
The ALS Society of Canada (ALS Canada), in partnership with Brain Canada, today announced $4.5 million in funding for nine new ALS research projects. This means that since the Ice Bucket Challenge became a social media phenomenon in 2014, nearly $20 million has been invested in Canadian ALS research at a time when it has […]
Published in Events on October 14, 2016
Tags: ALS, ALS awareness, community, fundraising, giving, support, WALK for ALS
Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the country – from Victoria, BC to St. John’s, NL, and from Windsor, ON to Whitehorse, […]
Published in Stories on August 16, 2016
Tags: advocacy, ALS, ALS awareness, community
Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS. As someone who spent much of his adult life in a role […]
Published in Research on July 28, 2016
Tags: ALS, ALS research, genetic research
Earlier this week researchers announced that the gene NEK1 has been found to play a significant role in the development of amyotrophic lateral sclerosis (ALS). This landmark discovery is the result of an 11-country research collaboration that was funded through the Ice Bucket Challenge. The research team included 3 Canadians, one of whom was directly […]
Published in Stories on June 1, 2016
Tags: ALS, ALS awareness, ALS Awareness Month, community
Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the […]
Published in Stories on February 12, 2016
Tags: ALS, als stories, care, caregiving, community, support
1988. At the office. A young independent redhead grabs Jocelyn’s attention immediately. She emits a contagious “joie de vivre” that instantly seduces the young man. Chantal, on the other hand, was charmed by Jocelyn’s ability to listen and his sincere consideration for everyone around him. After almost 23 years of marriage and a daughter named Maya, their […]
Published in Advocacy on January 4, 2016
Tags: advocacy, ALS, ALS awareness, policy, support
We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some […]
Published in Stories on December 15, 2015
Tags: ALS, als stories, awareness, care, caregiving, community, families with ALS
Last Christmas I was playing hockey. Now I need help to stand up. John Hamm, diagnosed with ALS in 2014 One of John Hamm’s favourite holiday traditions is playing pond hockey with his three kids. But this year, he won’t be strapping on skates. This holiday season, John’s wife Cathy will bundle him up in […]
Published in Stories on September 23, 2015
Tags: ALS, ALS awareness, fundraising, giving, Ice Bucket Challenge, support
Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game. We want to thank […]
Published in Stories on July 30, 2015
Tags: ALS, ALS awareness, fundraising, giving, Ice Bucket Challenge, support
“The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat […]
Published in Stories on June 12, 2015
Tags: ALS, ALS awareness, fundraising, giving, Ice Bucket Challenge
Canada you made a difference! $17 million was raised through the ALS Ice Bucket Challenge in 2014 ALS Research: $11.5 million went to ALS research from ALS Societies across Canada We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program By October 2015 $12.9 MILLION to be invested in […]
Published in Research on April 5, 2015
Tags: ALS, ALS gene, ALS research, genetic research
A large consortium of researchers from six countries have definitively identified a new ALS gene called TANK-binding kinase 1 (TBK1) by performing a rigorous study that involved sequencing of more than 2800 people with ALS compared with more than 6000 control samples. Canadian researcher Dr. Guy Rouleau, Director of the Montreal Neurological Institute and his […]
