Your messages of hope, strength and resiliency during the holiday season

What is community? It’s where we find people with whom we can share experiences. Community is where we are relentless in our efforts to change ALS forever. It’s where we come together and use our voice to fight for each other. To build resilience.   Community is where we come together to connect meaningfully. A […]

My brother Andrew, my only sibling, my closest friend.

Stories like the one below from the community are so important and really help people feel connected to one another. Right now we are collecting short stories and messages of hope from people like you so that we can share them with the community throughout the holiday season. You can contribute here. I always found […]

ALS gave me a different perspective

Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight of the world on my shoulders by telling me I have ALS, and the next […]

Maintaining dignity, independence and safety through ALS Canada’s Equipment Loan Program

Mark Vivarais was almost in tears as he walked back to his wife, Sandra, from a washroom at an outdoor outlet mall in Florida. He’d been stuck in there for half an hour, struggling to pull himself up from the low toilet seat. “That’s when it hit me,” Sandra recalled. “Oh my god, this is […]

COVID-19 and the impact of your donor dollars

Because of supporters like you, in addition to the $10,000 match that was offered by ALS Canada’s dear friend, Deirdre, $24,000 was raised for the ALS Canada COVID-19 Urgent Response Fund and it has helped to evolve our programs for people and families living with ALS. How has the COVID-19 Urgent Response Fund made a […]

ALS Canada community support services continue to evolve during COVID-19

How support services are changing In the wake of the COVID-19 pandemic, our number one priority was to support the safety of the ALS community and our staff, and as a result, we quickly pivoted to moving all ALS Canada office staff to working remotely from home and made changes to our service model to […]

Team “Living into a Cure” is keeping hope alive

Charmaine Loverin, who was diagnosed with ALS last year, has stayed positive through tremendous change and upheaval imposed by the disease, especially during the COVID-19 crisis. She left her home and relocated to Belleville to live with her sister, Michelle, who reached out with “open arms.” After the move, Charmaine returned to Toronto on a […]

You’re invited to the Walk to End ALS virtual finish line!

This Sunday (June 21) at 11:00am ET, you are invited to join ALS Canada’s Walk to End ALS virtual finish line – our biggest online celebration ever!  What is the virtual finish line? For one hour, we’re taking to the virtual airways for a live-streaming celebration unlike anything you’ve ever seen before. There will be […]

A Duty to help

ALS shatters dreams no matter when it strikes. For Deane Gorsline, 31, and his wife, Danielle, living with ALS means letting go of a lifetime of dreams. Focusing on the present helps them stay positive, whether it’s enjoying precious time with their new puppy, Trigger, or supporting the ALS community they belong to by joining […]

Resilient spirit sparks desire to live well and to give back

Marla Dahlke says she was like “a deer in the headlights” when doctors told her she had ALS last year. She’s since had time to process that information, adapt to her new reality, and reconnect with her resilient inner voice. “You can only feel sorry for yourself for so long and even you get sick […]

Daughter raises record amount for virtual Walk to End ALS

Jocelyne Gall is doing her best to support her dad, Bill, who was diagnosed with ALS in July 2018. As the only child of divorced parents, she is the only family member attending to her dad’s needs – and with three young children of her own, she has a lot to manage. While her situation […]

Day 8: Get creative!

Haven’t yet decided how you’re going to do the Walk to End ALS in your own way on Sunday, June 21? You need not look further than the Ice Bucket Challenge to know that the ALS community is creative and resilient, so they’ve got you covered! Here are just a few innovative ways our community […]

Uncharted territory just “part of the journey” for 2020 virtual Walk participants

Even a high level of awareness about ALS cannot fully prepare anyone for what it takes to navigate the changes that occur as the disease progresses. Charlotte and Bob Brethour have faced many difficult hurdles, but they still appreciate every day they share together, “even when the best-laid plans have gone awry,” says Charlotte. “We’re […]

Celebrating the strength of ALS Canada’s volunteer community

ALS doesn’t stop and neither will we. Even during these unprecedented times, ALS Society of Canada volunteers continue to give their time and skills to support people and families living with ALS.   Over the past week, in recognition and celebration of National Volunteer Week 2020 #NVW2020, you’ve had the chance to get to know some of our […]

In the face of ALS, Dad is a hero and community is everything

Kelsey Barker describes her dad, Jeff, as her hero. Diagnosed with ALS in February 2018, he has since lost the use of his right arm and is now having difficulty breathing and walking – but ALS has not changed the person he is. “He lights up a room. He is selfless and courageous. He pushes […]

Creating with her hands until she no longer can

When Shelly Gregory first noticed her speech was slurred two years ago, she drove herself to the hospital in Belleville thinking she was having a stroke. Eight months later, in May 2018, she learned she had bulbar onset amyotrophic lateral sclerosis – a form of ALS that first affects people from the neck up. Since […]

How charitable action inspired a cross-Canada bike journey

Last spring, Mike Leech, 59, approached his plant manager to request a 2-month leave from work to complete a bike ride across Canada for charity. An avid cyclist, he dreamed of cycling coast to coast but he wanted to make it more than just a physical challenge. He wanted to raise awareness and money for […]

From the Boston Marathon to the Walk to End ALS

On June 15, Don Doan participated in the Walk to End ALS in Brampton for the fourth time. It’s been three years since he was able to walk the course, but his positive outlook hasn’t changed. There are always people around, including his wife, Pam, to help with his wheelchair. “Generally, it’s a fight over […]

Fighting for more time – to dream, to live, to be with loved ones

Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk without assistance. “Now that I am living with ALS, the roles are a bit reversed,” […]

Holiday gift ideas for someone living with ALS

What do you give someone living with ALS to show you care? There’s no ‘one-size-fits-all’ gift that works for everyone, but there are special ways to say “I am thinking of you.” The holiday season can be a perfect time to do just that. We recognize that it’s not always easy to know how to […]

Toilets are turning heads and raising awareness for ALS in the Soo!

Last summer when her mother Deloris was diagnosed with amyotrophic lateral sclerosis (ALS), Jennifer Tranberg decided to plan a community fundraising event in conjunction with members of her son’s hockey team, the Sault Ste. Marie Pee Wee Major AA Junior Greyhounds. With so many special events competing for charitable giving, Jennifer wanted to come up […]

Honouring Mom this Mother’s Day, and always

For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be the first Mother’s Day she spends without her mother, Margaret. After participating in the 2016 […]

Fulfilling a promise and a passion

National Volunteer Week: Tara Wingrave With two 18 year-old daughters, a 19 year-old son, and a highly demanding job, life is hectic, but that won’s stop me from making the time to organize the Barrie WALK for ALS again this year. It’s something I feel passionate about, and it’s one of the most important ways […]

Finding support, hope, and community through volunteering

National Volunteer Week: Jacqui Devine They always say ALS is rare, so it’s surprising how many times you hear about people who have been diagnosed with the disease. In 2012, I was working as a personal support worker and my favourite client was living with ALS. Since I knew very little about it, I decided […]

Living with ALS during the Holidays: the Peacock Family

When a friend or loved one is living with ALS, the holiday season can be a difficult time. This is certainly true for the Peacock family ever since husband and father Jeff was diagnosed with ALS three years ago. This year, Jeff won’t be able to decorate the tree, hand out gifts or enjoy dinner […]

Canada’s rising stars in ALS research receive more than $1 million from the ALS Canada Research Program and Brain Canada

The generosity of Canadians has helped three early-career researchers to make ALS the focus of their work in the country’s labs and academic institutions. The research funding, which totals more than $1 million, has been awarded through the ALS Canada Research Program and Brain Canada as a result of money raised through the Ice Bucket […]

WALK for ALS early results: $3.9 million (and counting!) raised nationwide

Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the country – from Victoria, BC to St. John’s, NL, and from Windsor, ON to Whitehorse, […]

ALS societies across Canada mourn the loss of Mauril Bélanger

Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS. As someone who spent much of his adult life in a role […]

June is ALS awareness month

Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the […]

Become a fundraiser through community engagement

Community engagement plays a really important role in fundraising for ALS Canada. We are grateful for everyone who gets involved and dedicates their time to hosting BBQ’s, block parties, dance-a-thons, and Ice Bucket Challenges! We could not do the work we do, without your support. Meet Kinga Repic. ALS Canada: What kind of community events […]

Love wins against ALS

1988. At the office. A young independent redhead grabs Jocelyn’s attention immediately. She emits a contagious “joie de vivre” that instantly seduces the young man. Chantal, on the other hand, was charmed by Jocelyn’s ability to listen and his sincere consideration for everyone around him. After almost 23 years of marriage and a daughter named Maya, their […]

The holidays will never be the same for John

Last Christmas I was playing hockey. Now I need help to stand up. John Hamm, diagnosed with ALS in 2014 One of John Hamm’s favourite holiday traditions is playing pond hockey with his three kids. But this year, he won’t be strapping on skates. This holiday season, John’s wife Cathy will bundle him up in […]