Until he was diagnosed with ALS in 2016, Alan Medcalf spent his adult life “in love with movement.” He was a snowboarder, cross-country skier, unicyclist, cyclist and competed as a runner, swimmer and triathlete. After a second hip replacement he cycled coast to coast across Canada in 2000 and logged over 100,000 km in the […]
Finding ways to make a meaningful difference while living with ALS
Published in Stories, Walk To End ALS on September 3, 2019
Tags: 2019-personal-stories, ALS, ALS awareness, als stories, Every August Until A Cure, funding als research, living with ALS, walk to end als
Mother and son hold on to precious time left together
Published in Fund Development, Stories on August 23, 2019
Tags: 2019-personal-stories, ALS, ALS research, als stories, caregiving, Donate to ALS, Every August, Every August Until A Cure, families with ALS, fundraising, Ice Bucket Challenge, support
Five years ago, when the ALS Ice Bucket Challenge went viral in 2014, Mario knew very little about ALS, and had no idea how it would affect his life. Because of a co-worker whose dad was living with ALS, Mario completed the ALS Ice Bucket Challenge. “Once I got tagged in a post there was […]
From ice bucket to bucket list: how Margot is coping with ALS
Published in Research, Stories on August 15, 2019
Tags: 2019-personal-stories, ALS Canada Research Program, ALS research, als stories, Donate to ALS, Every August, Every August Until A Cure, find a cure for ALS, funding als research, fundraising, Ice Bucket Challenge, living with ALS, motor neuron disease
Margot Algie heard about the ALS Ice Bucket Challenge in 2014 through friends and had no idea that only one year later, she would be diagnosed with the disease. Since then, she has come to understand firsthand the importance of maintaining the momentum of the viral social media phenomenon that resulted in a $21.5M investment […]
No time to lose: ALS Canada volunteer and fundraiser sees urgent need for change
Published in Research, Stories, Volunteers on August 2, 2019
Tags: 2019-personal-stories, ALS Canada Research Program, als cure, ALS research, caregiving, Donate to ALS, Every August, Every August Until A Cure, fundraising, Ice Bucket Challenge, living with ALS, motor neuron disease
Beth Robertson’s husband, Tim, lived courageously with ALS for 12 years. He was sustained by the loving presence of his wife, Beth, his three children, and a large network of family and friends. Beth says she would do it all over again for Tim, but she admits ALS is a terrible burden for everyone it […]