Daniella D’Amici demonstrates resourcefulness and resilience in the face of adversity

Following her father’s ALS diagnosis in the summer of 2022, Daniella D’Amici – a 2023 ALS Canada Kevin Daly Bursary recipient – continues to demonstrate her resourcefulness and resilience in the face of adversity. Currently a biomedical engineering student at the University of British Columbia, Daniella always knew she wanted to pursue a career that […]

2023 ALS Canada Kevin Daly bursary recipient Sarah Jacob has her sights set on change

For Sarah Jacob, furthering her studies in neuroscience means more than just receiving a degree. Sarah, a master’s student at the University of Calgary, began studying neuroscience during her undergrad, having had a general interest in the subject. Following her mother’s ALS diagnosis in 2018, her passion for neuroscience intensified – specifically ALS research. “I […]

Catherine Brassard exhibits steadfast determination to further her medical studies in the face of ALS

A medical student at the Université de Sherbrooke, Catherine Brassard exhibits a steadfast determination and adherence to furthering her studies in the wake of her father’s ALS diagnosis in early 2023. Her interest in pursuing neurology in her studies was amplified as her family began navigating life with the disease. With her dad’s symptoms first […]

An exciting GivingTuesday announcement!

Double your impact this GivingTuesday When it comes to fundraising for ALS, next Tuesday (November 28) is the single most important day of the year, and to help us celebrate the day, we have an exciting announcement. Does this sound intriguing? Keep reading…. Every year, GivingTuesday gains more momentum in Canada as charities across the country rally […]

Empowering resilience and academic pursuits

The ALS Society of Canada (ALS Canada) and the Kevin Daly Bursary Fund are pleased to announce the recipients of the 2023 ALS Canada Kevin Daly Bursary, granted to post-secondary students who share a personal connection to amyotrophic lateral sclerosis (ALS). The ALS Canada Kevin Daly Bursary is a national program for eligible students who […]

My brother Andrew, my only sibling, my closest friend.

Stories like the one below from the community are so important and really help people feel connected to one another. Right now we are collecting short stories and messages of hope from people like you so that we can share them with the community throughout the holiday season. You can contribute here. I always found […]

ALS gave me a different perspective

Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight of the world on my shoulders by telling me I have ALS, and the next […]

Maintaining dignity, independence and safety through ALS Canada’s Equipment Loan Program

Mark Vivarais was almost in tears as he walked back to his wife, Sandra, from a washroom at an outdoor outlet mall in Florida. He’d been stuck in there for half an hour, struggling to pull himself up from the low toilet seat. “That’s when it hit me,” Sandra recalled. “Oh my god, this is […]

Tips for successful virtual fundraising

Every year, hundreds of community events take place across Ontario, raising critical awareness and funds toward a future without ALS.  With the pandemic changing the way we work, dine and live, our dedicated community is adapting how they fundraise, too. We’ve compiled a list of some of the amazing and creative ways ALS Canada event […]

COVID-19 and the impact of your donor dollars

Because of supporters like you, in addition to the $10,000 match that was offered by ALS Canada’s dear friend, Deirdre, $24,000 was raised for the ALS Canada COVID-19 Urgent Response Fund and it has helped to evolve our programs for people and families living with ALS. How has the COVID-19 Urgent Response Fund made a […]

Daughter raises record amount for virtual Walk to End ALS

Jocelyne Gall is doing her best to support her dad, Bill, who was diagnosed with ALS in July 2018. As the only child of divorced parents, she is the only family member attending to her dad’s needs – and with three young children of her own, she has a lot to manage. While her situation […]

In the face of ALS, Dad is a hero and community is everything

Kelsey Barker describes her dad, Jeff, as her hero. Diagnosed with ALS in February 2018, he has since lost the use of his right arm and is now having difficulty breathing and walking – but ALS has not changed the person he is. “He lights up a room. He is selfless and courageous. He pushes […]

Paying it forward to benefit people with ALS in the future

Deirdre O’Connor and her husband, Floyd, became ALS Canada donors 15 years ago. At the time, they had no personal connection to the cause, but they liked the fact that ALS Canada was a small, cost-effective charitable organization without a lot of overhead. Deirdre’s generosity extends to half a dozen or more organizations she supports […]

Fulfilling a promise and a passion

National Volunteer Week: Tara Wingrave With two 18 year-old daughters, a 19 year-old son, and a highly demanding job, life is hectic, but that won’s stop me from making the time to organize the Barrie WALK for ALS again this year. It’s something I feel passionate about, and it’s one of the most important ways […]

Finding support, hope, and community through volunteering

National Volunteer Week: Jacqui Devine They always say ALS is rare, so it’s surprising how many times you hear about people who have been diagnosed with the disease. In 2012, I was working as a personal support worker and my favourite client was living with ALS. Since I knew very little about it, I decided […]

Fighting for Genetic Fairness

National Volunteer Week: Benjamin Ritsma I am a physician in Physical Medicine and Rehabilitation (Physiatry), a specialty that aims to help people function better as they deal with a neurological or musculoskeletal condition. My career path was influenced by my own family’s experience with ALS. As a Physiatrist at the ALS clinic, I work with […]

Making a meaningful contribution

National Volunteer Week: Caroline Price The hardest part about retiring for me was losing the daily connection with my “family” of colleagues. It was one of the reasons I was actively looking for a volunteer role when a position with ALS Canada turned up in an online search. If an opportunity presents itself at the […]

Living, Loving, Laughing… and Volunteering

National Volunteer Week: Carol Skinner When I received my ALS diagnosis in 2013, I was given two to three years to live. I was 41 years old. I had settled into a rewarding career – art therapy – and I was happily married to the man I love. Learning I had ALS and that “there […]

“Compassion is what drives us.”

National Volunteer Week: Geneviève Bertrand Many of us who contribute to the work of ALS Canada as volunteers have a personal connection to ALS, whether we are living with the disease ourselves, or supporting or remembering a close family member, friend, colleague or acquaintance. We are spurred on by the hope for a cure, and want […]