Published in Fund Development, Giving Tuesday, Stories on November 24, 2020
Tags: ALS, ALS awareness, als stories, community, Donate to ALS, donating to ALS, fundraising, giving, giving back, holidays, living with ALS, support
Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight of the world on my shoulders by telling me I have ALS, and the next […]
Published in Update on January 21, 2019
Tags: holidays
2018 was a momentous year for the ALS community. Discoveries were made that advance our understanding of the disease, clinical trials showed encouraging results, and the first therapy in over 20 years was approved for use in Canada for people living with ALS. Yet in the same year, ALS continued to take countless moments and […]
Published in Stories on December 18, 2018
Tags: holidays
For many people, the holidays are a special time for making memories and spending quality time with friends and loved ones. For 29 year-old mother of three, Stephanie, these quality moments became all the more meaningful since she was diagnosed with ALS. Stephanie’s ALS story “I don’t want to die. I want to see my […]
Published in Support & Services on December 14, 2018
Tags: holidays
Looking after a family member or close friend who is living with ALS is a precious act of love and devotion. It is often a full-time commitment that demands a lot of physical and emotional energy, making it challenging to maintain your own health and well-being. If you know someone in this role, the holiday […]
Published in Fund Development, Stories on December 7, 2018
Tags: holidays
Prior to 2009, Zehra Madenli was an active college student, studying Fashion Management at George Brown College in Toronto. She was talkative and outgoing, and loved spending time outdoors. Everything changed when Zehra was diagnosed with ALS. Within 12 months of diagnosis, she lost the ability to move and speak. Day by day, Zehra lost […]
Published in Fund Development, Stories on November 27, 2018
Tags: Giving Tuesday, holidays
2018 has been a year of promising discoveries and encouraging clinical trials, but ALS continues to rob countless moments from too many families – families like the Corbers who know all too well the gaps ALS can leave in people’s lives. Today, on Giving Tuesday, every donation to ALS Canada will be 100% matched by […]
Published in Fund Development on November 22, 2018
Tags: holidays
When you live with a terminal disease like ALS, losing the use of your arms means losing the ability to hug those you love. Losing the use of your legs means you now watch — not run through the park with — your children. Losing the ability to speak means never again saying, “I love […]
Published in Stories on December 13, 2017
Tags: families with ALS, holidays
James and Madeleine have been married for 55 years. Their shared life together has included three children, six grandchildren, and a beloved cottage that has been in the family for over five decades. ALS has forced the family to make some adjustments. For example, since James was diagnosed with ALS in 2013, he has lost […]
Published in Stories on November 28, 2017
Tags: Giving Tuesday, holidays
When someone receives an ALS diagnosis, the first thought is often about the impending loss of function; for example, the progressive inability to walk, talk, eat and swallow. But the reality of this unforgiving disease can also result in emotional challenges, too. This is something Barry Law knows all too well. When Barry was diagnosed […]
Published in Support & Services on November 16, 2017
Tags: caregiving, community, holidays, living with ALS, support
What do you give someone living with ALS to show you care? There’s no ‘one-size-fits-all’ gift that works for everyone, but there are special ways to say “I am thinking of you.” The holiday season can be a perfect time to do just that. We recognize that it’s not always easy to know how to […]
