Impact of donations

Where your donations go

Generous donors support us in carrying out our mission as we receive no government funding. We are accountable for every cent that you give, and we are committed to investing wisely and sustainably.

Of every dollar you give,

  • 70 cents is allocated to improving the lives of people affected by ALS through community-based support services, advocacy and research for a future without ALS.
  • 26 cents is invested into awareness, education and fundraising. Through this, we can raise funds, inspire hope, and unite with our community.
  • 4 cents of every dollar we receive covers administration and operation costs that are essential to making ALS Canada’s work possible.

Interested in diving in deeper? Read ALS Canada’s latest audited financial statements.

How your donations support the ALS community

Investing in research for a future without ALS

Because of you, the ALS Canada Research Program funds high-quality ALS research in laboratories across the country. Learn more about what studies we invest in and the process involved in decision-making by visiting the ALS Canada Research Program page.


Dr. Heather Durham headshot


“I have tremendous confidence in the ability of ALS Canada to advance research, to invest donor dollars wisely, and to create a better future for everyone affected by this devastating disease. As such, I decided to include a contribution in my will to ALS Canada to ensure that my work continues long after I’ve hung up my lab coat.” 

Dr. Heather Durham, Researcher and Professor, Montreal Neurological Institute and Hospital


A voice with government decision-makers

Because of you, we are representing the voices and experiences of people living with ALS to officials in the federal and provincial governments advocating for policy changes that will have meaning impact. Learn about our advocacy initiatives and priorities.


ALS Canada staff and ALS community members
Norm MacIsaac, Diagnosed with ALS in 2014 (Front, centre) & Mike Rannie, Diagnosed with ALS in 2017, Passed away in January 2020 (Back row, third from left)

“It’s important that people who aren’t as familiar with ALS understand the many challenges you face when living with this disease. That’s why I give my efforts to ALS Canada’s advocacy initiatives – to educate and help drive action.”Mike Rannie, Diagnosed with ALS in 2017, Passed away in January 2020.

The right help at the right time

Because of you, we are supporting people and families living with ALS in Ontario by providing regional support and access to the ALS Canada Equipment Program. Learn more about how we are providing support services in the community.

James King

“I support ALS Canada because I know what a difference support services can make. When my wife Judith was alive, we desperately wanted to keep her at home for as long as possible. ALS Canada was able to provide a wheelchair and a ceiling lift, both of which were very helpful.”
– James King, Former caregiver


Here are a few things we accomplished together in 2018:

  • 2,600 pieces of equipment were provided– free of charge – to people living with ALS in Ontario through the ALS Canada Equipment Program at a cost of $1.3 million.
  • 1,300 home visits took place by ALS Canada Regional Managers, who provided personalized connections to people and families living with ALS throughout Ontario.
  • 150 support group meetings were held throughout Ontario, enabling caregivers and people living with ALS to receive encouragement, comfort and advice from others with firsthand knowledge of the disease.
  • Invested $1 million in 8 research projects focused on scientific discovery to treat ALS
  • Awarded $720,000 to 6 trainee researcher grants that will help to stimulate Canada’s next generation of researchers (in partnership with Brain Canada and La Fondation Vincent Bourque)
  • The profile of ALS was raised on Parliament Hill through 3 meetings of the all-party ALS Caucus and 7 meetings between ALS Canada and MPs and policy advisors

Learn more about the impact of your donations in the 2018 Annual Report to the Community