Available Resources

This resource provides basic information on the genetics of ALS, support for families affected on how to approach conversations about genetics with children and youth, and genetic testing considerations for at-risk adults. We recommend using this resource as an addition to genetic counseling, wherever you are in the world.

This fact sheet aims to help educators understand what ALS is, what students might experience while navigating an ALS diagnosis of someone close to them, and how school staff and school administrators can support students who have been impacted by ALS, especially in learning and school performance.

The ALS Canada Children and Youth Resource Hub provides educational materials that will address the unique challenges faced by children and youth impacted by ALS.