News

Military veterans face an increased risk of developing ALS, underscoring how much more we need to understand about the disease and the need to accelerate progress toward effective treatments. ALS Canada, alongside the ALS community across Canada, continues to advocate…

This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada advocates federally and provincially within…

Tammy Moore, CEO of ALS Canada, shares a call to action in an op-ed published in The Hill Times for ALS Awareness Month, highlighting the urgent need to better understand amyotrophic lateral sclerosis (ALS) and its impact on thousands of…

This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada advocates federally and provincially within…

December 11, 2025 - Canada’s Drug Agency (CDA) has released its final reimbursement recommendation for Qalsody (tofersen), advising that the therapy be reimbursed with conditions for adults living with SOD1-ALS. This decision is an important step forward in the pathway…

This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada advocates federally and provincially within…

This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada advocates federally and provincially within…

Engaging with elected officials is a cornerstone of effective advocacy. Whether you are living with ALS, a caregiver, or someone who wants to see a better reality for people affected by this devastating disease, your voice matters. This blog post…