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News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Advocacy

    Engaging with elected officials: ALS advocacy 101

    June 09, 2025
    Engaging with elected officials is a cornerstone of effective advocacy. Whether you are living with ALS, a caregiver, or someone who wants to see a better reality for people affected by this devastating disease, your voice matters. This blog post…
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    Advocacy

    ALS Canada Advocacy Update, January – March 2025

    April 10, 2025
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada…
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    Advocacy

    ALS Canada submits patient input submission for Canada’s Drug Agency’s review of QALSODY (tofersen)

    March 11, 2025
    ALS Canada has submitted the patient input submission for Canada’s Drug Agency (CDA)’s review of QALSODY (tofersen), a therapy recently approved by Health Canada. This submission is a crucial step in ensuring that voices of the ALS community are reflected…
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    Advocacy

    ALS Canada Advocacy Update, October-December 2024

    January 16, 2025
    This series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario, these…
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    Advocacy

    ALS Canada Advocacy Update July-September 2024

    October 01, 2024
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,…
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    Advocacy

    ALS Canada Advocacy Update – April-June 2024

    July 04, 2024
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,…
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    Advocacy

    ALS Canada Advocacy Update – January-March 2024

    April 08, 2024
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,…
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    Advocacy

    ALS community calls on the Ontario government to invest $6.6 million in Budget 2024 to address urgent disparities in access to ALS services and care

    February 21, 2024
    Implementation of the Ontario Provincial ALS Program is critical for addressing the urgent needs of Ontarians living with ALS and their families Toronto – Today, people living with amyotrophic lateral sclerosis (ALS) and their caregivers join the ALS Society of…
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