No one should carry the cost of ALS alone

First comes the shock of an ALS diagnosis. The shock of its costs quickly follows.

At the very moment household income drops, the costs of ALS begin to rise.

Every name makes a difference

Unite with families affected by ALS by adding your name today.

Thanks to a generous donor, every name added unlocks a $1 donation to ALS Canada, up to $5,000.

INCOME ↓

As ALS symptoms progress, many people living with the disease are forced to leave the workforce. Spouses and loved ones often reduce their hours or leave work altogether to provide care.

COSTS ↑

Specialized equipment. Endless appointments. Home modifications. Travel to appointments.

Day after day, the expenses add up.

AVERAGE ANNUAL COST
$123,000

For the average family affected by ALS, those costs can reach $123,000 every year.

That’s a heavy burden when you’re already carrying so much.

If you believe no family should face the cost of ALS alone, add your name today.

The Burden of ALS Study

Some of the hardest impacts of ALS can never be measured: losing the ability to move independently, speak in your own voice, or hold the hand of someone you love.

But the financial impact can be measured.

To better understand the burden facing families, ALS Canada gathered firsthand data from people living with ALS and their caregivers across Canada.

The findings paint a concerning picture:

78%
the portion of total ALS costs in Canada carried directly by people living with ALS and their families.
$43,000
the average yearly income a person with ALS loses after diagnosis.
30+ hours/week
the time nearly half of caregivers spend on unpaid caregiving support.

Download the Burden of ALS Study to learn more about the financial realities families across Canada face.

DOWNLOAD THE STUDY

United in facing the cost of ALS

When you understand the true cost of ALS, it’s clear why support matters.

Every day, ALS Canada helps people living with ALS and their families navigate some of their most difficult moments by providing trusted information, practical support, connections to community and expert guidance.

Together, we can be there for families from the start, helping them through financial pressures, low moments, and everything in between.

Unite with families affected by ALS by adding your name today.

Every name added unlocks a $1 donation to ALS Canada, up to $5,000.

ADD MY NAME