End The Legacy
End The Legacy is a nonprofit organization dedicated to supporting and advocating for their community. Operating under the ALS Hope Foundation umbrella, these organizations together will develop educational programs about familial ALS and FTD, establish support groups for members of the familial ALS and FTD community, engage the medical community to establish guidelines for care of asymptomatic gene carriers, and advocate for the hundreds of thousands of people at higher risk for developing ALS or FTD through the inheritance of a genetic variant that runs in their family.
