ALS Canada is committed to advancing and facilitating genetic testing practices across Canada, and we are advocating with clinicians nationally, through collaboration with the CALS network, for broader coverage and access to counselling and testing. We are open to any individuals wanting to share their experiences with accessing genetic counselling and testing, either positive or negative. Information to better understand barriers to genetic counselling and testing can help to shape ALS Canada’s approach to advocacy moving forward.
Please reach out to us at research@als.ca.