39 members of the Canadian ALS community honoured with King Charles III Coronation Medal

Medals were presented to Canadians to recognize their contributions
to advocacy, research, and support towards a world free of ALS

Toronto, ON – The ALS Society of Canada (ALS Canada) was honoured to be selected to recognize 39 Canadians from the ALS community across the country to receive the prestigious King Charles III Coronation Medal for their outstanding contributions toward a world free of ALS.

Established in May 2023 to commemorate the Coronation of His Majesty King Charles III, administered by the Chancellery of Honours at Rideau Hall, the Medal recognizes individuals who have made significant contributions to Canada, their province or territory, region, or an achievement abroad that brings benefit or honour to the country.

ALS Canada nominated individuals who have made an impact within the ALS community through advocacy, research, fundraising, and clinical care. The recipients include people affected by ALS, volunteers, researchers, clinicians, and other leaders.

“The Canadian ALS community is united in a shared vision of a world free of ALS, working tirelessly every day with each person contributing in their own way,” states Tammy Moore, CEO of ALS Canada. “Whether advocating for access to care and treatments, raising funds and awareness, advancing research, or providing individual care and support, their efforts are making a meaningful difference for the nearly 4,000 Canadians living with the disease. We are honoured to have this opportunity to celebrate these 39 individuals.”

Presentations were held across Canada to recognize the recipients.

• Mike Cels (Ontario) – ALS community advocate, ALS Canada Community Ambassador, and volunteer
• Claudine Cook (Quebec) – Executive Director, ALS Quebec
• Cathy Cummings (Ontario) – CEO, International Alliance of ALS/MND Associations
• Kevin Daly (Ontario) – ALS community advocate, ALS Canada Community Ambassador, and volunteer (presented posthumously to his wife, Elena Daly, and children, Erica and Allison)
• Bill Duff (Nova Scotia) – ALS community advocate and volunteer
• Dr. Heather Durham (British Columbia) – Professor Emerita, Department of Neurology and Neurosurgery and Montreal Neurological Institute, McGill University
• Dr. Andrew Eisen (British Columbia) – Professor Emeritus, University of British Columbia Neurology
• Dr. Angela Genge (Quebec) – Executive Director, ALS Centre of Excellence for Research and Patient Care, Director, ALS Clinic at The Neuro (Montreal Neurological Institute-Hospital), and Member of ALS Canada Board of Directors
• Jennifer Hutton (Nova Scotia) – ALS community advocate, ALS Canada Community Ambassador, and volunteer
• Dr. Wendy Johnston (Alberta) – Professor of Neurology and Neurologist, University of Alberta’s ALS Clinic and Member of ALS Canada Board of Directors
• Dr. Sanjay Kalra (Alberta) – Professor and Henri M. Toupin Chair in Neurological Sciences, Faculty of Medicine & Dentistry, University of Alberta
• Susan Kennerknecht (Quebec) – ALS community advocate and volunteer
• Mark Kirton (Ontario) – ALS community advocate and volunteer
• Dr. Lawrence Korngut (Alberta) – Neuromuscular Neurologist and Professor, Hotchkiss Brain Institute, University of Calgary
• Isabelle Lessard (Quebec) – Director, Fondation Vincent Bourque and volunteer
• Norman MacIsaac (Quebec) – ALS community advocate, ALS Canada Community Ambassador, and volunteer
• Brad MacKenzie (British Columbia) – ALS community advocate, ALS Canada Community Ambassador, and volunteer (presented posthumously to his mother, Rose MacKenzie-Kirkwood)
• Ellen Mahoney (British Columbia) – ALS community advocate and volunteer
• Dr. Geneviève Matte (Quebec) – Clinical Assistant Professor, Department of Neurosciences, Faculty of Medicine, Université de Montréal (CRCHUM)
• Kathy MacNeill (Prince Edward Island) – President of the ALS Society of Prince Edward Island and volunteer
• Deirdre O’Connor (Ontario) – Volunteer
• Cali Orsulak (Manitoba) – ALS Canada Community Ambassador and volunteer
• Dr. Erik Pioro (British Columbia) – ALS Society of BC Professor, Chair of ALS Research, Professor of Neurology, Department of Medicine (Neurology), University of British Columbia, Djavad Mowafaghian Centre for Brain Health
• Cheryl Power (Newfoundland and Labrador) – Executive Director, ALS Society of Newfoundland and Labrador
• Diana Rasmussen (Manitoba) – Executive Director, ALS Society of Manitoba
• Beth Robertson (Ontario) – Volunteer
• Dr. Richard Robitaille (Quebec) – Professor, Department of Neuroscience, University of Montreal
• Dr. Guy Rouleau (Quebec) – Director of The Neuro (Montreal Neurological Institute‐Hospital), Chair of the Department of Neurology and Neurosurgery of McGill University, Director of the Department of Neuroscience of McGill University Health Centre, co‐founder of the Tanenbaum Open Science Institute, and First Vice‐President of the World Federation of Neurology
• Dr. Kerri Schellenberg (Saskatchewan) – Neuromuscular Neurologist and Associate Professor, University of Saskatchewan
• Dr. Christen Shoesmith (Ontario) – Associate Professor, Neurology, Western University, and Medical Director, Motor Neuron Diseases Clinic, University Hospital – London Health Sciences Centre
• Chris Snow (Alberta) – ALS community advocate and volunteer (presented posthumously to his wife, Kelsie Snow, and their children, Cohen and Willa)
• Dr. Michael Strong (Ontario) – Professor of Neurology, Department of Clinical Neurological Sciences, Western University
• Dr. David Taylor (Ontario) – Chief Scientific Officer, ALS Canada
• Wendy Toyer (British Columbia) – Retired Executive Director, ALS Society of BC
• Paula Trefiak (Saskatchewan) – ALS community advocate, ALS Canada Community Ambassador, and volunteer
• Dr. Christine Vande Velde (Quebec) – Professor, Department of Neurosciences, Faculty of Medicine, Université de Montréal (CRCHUM)
• Cindy Warren (Prince Edward Island) – ALS community advocate and volunteer
• Evelyn Wilson (Ontario) – Volunteer
• Dr. Lorne Zinman (Ontario) – Director, ALS/Neuromuscular Clinic, Sunnybrook Health Sciences Centre, Professor of Neurology, University of Toronto

About ALS and the ALS Society of Canada

Amyotrophic lateral sclerosis (ALS) is an unrelenting and currently terminal disease. It progressively paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe. Nearly 4,000 Canadians live with ALS and approximately 1,000 Canadians are diagnosed each year. Four out of five people living with ALS will die within two to five years of their diagnosis.

The ALS Society of Canada is working to change what it means to live with ALS. Grounded in and informed by the Canadian ALS community, we respond to the urgent unmet need for life-changing treatments by investing in high-quality research that will fuel scientific discovery and by engaging industry, supporting increased clinical capacity, and advocating for equitable, affordable, and timely access to proven therapies.

Responding to the tremendous need for current and credible ALS knowledge, awareness, and education, we empower Canadians affected by ALS to navigate the current realities of ALS, be informed consumers of ALS information, and advocate effectively for change. In Ontario, we provide direct community services to help people navigate ALS.

Founded in 1977, we are a registered charity that receives no core government funding – our work is powered by generous donors who share our vision of a world free of ALS.

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Join the conversation and connect with the ALS community online. Find ALS Canada on X, Instagram, or like our page on Facebook. Visit als.ca to find out more.

For more information:
ALS Society of Canada
media@als.ca
437-703-5402