News

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team, and what is happening in the ALS research world. By actively engaging with the global ALS community, supporting ALS research advancements, and providing knowledge…

Being a caregiver for someone living with ALS can be emotionally and physically exhausting, isolating, and overwhelming. Families need consistent guidance, resources, and support to manage both the disease and the strain it places on them. ALS Canada’s Community Leads…

December 11, 2025 - Canada’s Drug Agency (CDA) has released its final reimbursement recommendation for Qalsody (tofersen), advising that the therapy be reimbursed with conditions for adults living with SOD1-ALS. This decision is an important step forward in the pathway…

TORONTO, November 21, 2025 — The 2025 Allied Professionals Forum (APF) brings together more than 300 healthcare professionals from around the world, including physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers, and other specialists working in amyotrophic lateral sclerosis (ALS)…

Toronto, November 12, 2025 – The ALS Society of Canada (ALS Canada) and ALS Association are pleased to welcome the global ALS community to Toronto,…

ALS researchers worldwide continue to build on existing work and make new discoveries in the hopes of a world free of ALS. In the November 2025 Research Update, explore new insights into clinical trials, biomarkers, and strategies for understanding and…

In our blog series, Inside the Science, we break down and discuss trending topics in ALS research, making complex science accessible to anyone affected by ALS.   For much of ALS research history, clinicians could only track the disease by observing…

This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada…