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Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig’s Disease, or motor neuron disease in some regions of the world, is a progressive fatal neuromuscular disease.

The ALS Society of Canada is indebted to the Motor Neurone Disease Association (UK) for their permission to adapt their original booklet for our Canadian audience. A most special thank you is extended to all of the young Canadian contributors who had the courage to share their personal experiences for the purpose of helping others.

You are probably reading this booklet because your Mom or Dad or someone else special in your family has Amyotrophic Lateral Sclerosis. It is a long name and for short it is often called ALS.

When a family member has been diagnosed with Amyotrophic Lateral Sclerosis (ALS) children have many questions and concerns about the person they know and love.