Board of directors

ALS Canada’s Board of Directors provides strategic direction and oversight to ensure donor dollars are maximized to serve the organization’s areas of charitable purpose.

These leadership volunteers contribute expertise across various disciplines, a genuine passion for the cause, and a strong desire to make a difference. Below is our Volunteer leadership of the ALS Canada 2023/2024 Board of Directors.

Our founder: Arthur J. Hudson

Advisors

Community Services Advisory Council

The Community Services Advisory Council is composed of individuals with a variety of experiences with ALS who provide input and perspectives to support ALS Canada in improving the journey of people and families living with ALS in Ontario.

The Council serves in an advisory capacity to the Board, making recommendations for client service program delivery, community partnerships and provincial advocacy according to the strategic priorities.

Co-chairs

Kim Barry
Vice-President,
Community Services, ALS Canada

Lisa Flaifel
Director,
ALS Canada Board of Directors

Scientific and Medical Advisory Council

The Scientific and Medical Advisory Council provides strategic advice to the Board and management of ALS Canada to ensure all research activities contribute to the vision of ALS Canada, are aligned with the organization’s strategic priorities, are informed by best practices, and are carried out with integrity. The Council also facilitates collaboration within the Canadian ALS research community and supports the Canadian ALS research community’s involvement in international initiatives.

Co-chairs

Chantelle Sephton, PhD
ALS Canada Board Member; Associate Professor, Université Laval

David Taylor
Vice-President,
Research and Strategic Partnerships, ALS Canada

Turgay Akay, PhD
Dalhousie University

Gary Armstrong, PhD
The Neuro, McGill University

Vanina Dal Bello-Haas, PhD, PT
McMaster University

Martin Duennwald, PhD
Western University

Wendy Johnston, MD
University of Alberta

Hanns Lochmüller, MD, PhD
University of Ottawa

Cali Orsulak, BscPharm, BCPS, CDE
Patient Community Representative

Robin Parks, PhD
University of Ottawa

Gerald Pfeffer, MD, PhD
University of Calgary

Janice Robertson, PhD
University of Toronto

Richard Robitaille, PhD
Université de Montréal

Kerri Schellenberg, MD
University of Saskatchewan

Paula Trefiak
Patient Community Representative

EX-OFFICIO:

Colleen Doyle – Director, Canadian Research, ALS Canada
Richard Ellis – Chair, ALS Canada Board
Carolina Jung – Specialist, Research, ALS Canada
Tammy Moore – CEO, ALS Canada
Christen Shoesmith, MD – London Health Sciences Centre, CALS Chair (voting member)
David Taylor – Vice-President, Research and Strategic Partnerships, ALS Canada

Advocacy Committee

The Advocacy Committee provides professional and personal insight to the Board of Directors and to Staff to help advance our advocacy program. This includes advising the organization on which ALS advocacy priorities to bring forward to government and how to achieve results most effectively. The committee also ensures that ALS Canada’s advocacy efforts align with our strategic plan and are undertaken with the utmost integrity. Members of this committee have a variety of experiences including people and families affected by the disease, government relations experts, health sector professionals, and leading academic ALS researchers.

Chair

Richard Ellis
Executive Coach, global business executive & communications expert

Carmen Cels
Director, People & Culture, Roche Canada

Lisa Flaifel
Vice President, General Medicine, Bayer

Darrell Kane
Person living with ALS, National Account Manager – eCommerce

Kris Noakes
ALS Canada Board member; Community Advocate, living with ALS

Mike Cels
Person living with ALS, Retired from Pharmaceuticals

Dr. Angela Genge, MD, FRCP(C)
Director of the ALS Clinic and the Clinical Research Unit, The Neuro

Stephanie Mazzei
Therapeutics consultant, diagnostics, and digital health in cancer care

Dr. Karin Schnarr
Director, MBA Programs; Associate Professor, Policy & Law at the Lazaridis School of Business & Economics at Wilfrid Laurier University

EX-OFFICIO:

Tammy Moore – (ex-officio, Staff)
CEO, ALS Canada
Ilayda Ulgenalp – (ex-officio, Staff)
Manager, Advocacy and Stakeholder Relations, ALS Canada

Senior Management Team

The Senior Management Team works together each and every day to ensure the person living with ALS is at the centre of everything we do.