News

We are heartbroken to share with you that Eddy Lefrançois, ALS Canada Ambassador, passed away earlier today – a tremendous loss for the ALS community of a champion, advocate and friend. Diagnosed with ALS in 1992 with a prognosis of…

2018 funding competition with Brain Canada results in $720,000 for six trainee awards – more trainee awards in a single year than ever before TORONTO December 13, 2018 – The ALS Society of Canada (ALS Canada), together with Brain Canada, today announced…

The ALS Canada Research Program awards eight new project grants in the pursuit of new therapy targets. TORONTO, November 15, 2018 – The ALS Society of Canada (ALS Canada) today announced an investment of $1 million in eight new research projects being…

ALS research is at a time of unprecedented advancement and Canada’s world-class ALS research community – along with international ALS researchers and experts – are accomplishing more than ever before. With new advancements being announced daily, the ALS Canada Research…

Highlights: On October 4, Health Canada approved Radicava (edaravone) for the treatment of ALS. Health Canada’s terminology for this approval is called a Notice of Compliance, or NOC. The approval follows a 180-day priority review of the drug. Approval from…

Updated October 17, 2018 The first ALS gene was discovered over two decades ago. By the end of 2017, scientists had found more than 25 genes. By studying these genes that are involved in familial ALS, which accounts for 5 to…

The result of the 2014 Ice Bucket Challenge gave the ALS community a tremendous gift: awareness and unprecedented investment in ALS research. Thanks to the viral fundraising phenomenon that year, along with matched funds from Brain Canada (through the Canada…

2017 Annual Report to the community In 2014, the Ice Bucket Challenge gave hope to people and families living with ALS – hope that one day there would be a cure for this terminal disease. With the Ice Bucket…