As we jump into a new year, we look forward to continuing to connect, collaborate, and discover our way into 2026. Although we love to look at all the future can bring, let’s reflect for a moment on 2025.
Our blog covered it all this year, from inspiring stories across Canada, to exciting research updates and special moments recognizing key leaders in the ALS community. Here is a quick look at the top five posts our community enjoyed most:
Leah has been living with ALS for five years, navigating the challenges that each day can present. Finding a creative outlet can be a powerful way for people to connect and feel understood. Through her poetry, featured in our In My Words blog series, Leah shares her feelings and insights about living with ALS.
Amanda has been navigating life with an ALS diagnosis since 2021. Just entering her 20s, a terminal diagnosis is not something any young person would anticipate facing. Still, when faced with it, Amanda chose to share her story online to raise awareness. Featured in In My Words, Amanda shares a video explaining why she chooses to open up about her experiences with the world.
In early 2025, ALS Canada had the honour of selecting 39 Canadians from the ALS community to receive the prestigious King Charles III Coronation Medal for their outstanding contributions toward a world free of ALS. Presentations were held across Canada to recognize and celebrate the contributions of these individuals.
Throughout the year, the Driving Discovery blog series showcased many stories from within the ALS Canada Research Program. In this interview with members of the ALS Canada Research Team, David Taylor, Chief Scientific Officer, and Colleen Doyle, Director of Canadian Research, went in–depth to discuss the Program and the foundation of ALS discovery in Canada.
In early March, Health Canada approved QALSODY under a Notice of Compliance with Conditions for the treatment of ALS in adults who have a pathogenic variant in the SOD1 gene. A positive step forward for Canadians living with SOD1-ALS, there remain critical actions for public or private drug program reimbursement that ALS Canada will continue to advocate for.
We’ll be bringing you more community stories, research information, and updates in 2026! Follow us and the Canadian ALS community as we work toward a world free of ALS.
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