👋 Hey, I’m Bill Duff—Dad, Navy Veteran, and full-time cyborg. 🤖
At 29, I was diagnosed with ALS. The average life expectancy? 2-5 years. I’m now rolling into YEAR NINE. (Take that, statistics! 💪)
Late-stage ALS has turned me into something straight out of a sci-fi movie. I’ve got:
⚡ Wheels for legs (way less cool than Optimus Prime, but still)
⚡ A tablet that speaks with a robot voice (sadly, not Morgan Freeman)
⚡ A vent and trach to keep me breathing (life support, but make it fashion)
Basically, I’m a real-life Transformer—minus the explosions. But let’s be real… if I could pick my robot voice, it would definitely be Morgan Freeman. What about you? 🤖 Who would narrate your life?
As a dad, dad jokes are mandatory. My voice is controlled by Eye Gaze, but I tell my kids’ friends I use my mind. They stand there, jaws on the floor, while my daughter just sighs and mutters, “Not again, Dad.” 😂 Gotta keep life interesting, right?
But here’s the raw truth: ALS is brutal. It’s a relentless thief that steals your muscles, your voice, your independence—everything. And it doesn’t just take from the person diagnosed—it drains families, caregivers, and everyone who loves them. Yet, despite how awful it is, I’ve met the most incredible people—fighters, caregivers, advocates—pushing for better treatments and better care. These people? They’re warriors. They inspire me every single day.
So, if ALS is this terrible, why don’t I just choose MAiD and be done with it? Simple: because I’m not done.
MAiD is a deeply personal choice, and I respect everyone’s journey. But for me? I’ve got too much left to do. I was once told to set goals, no matter how impossible they seem. So I did. And my biggest goal? 🚀 To roll my daughter down the aisle at her wedding. To be there for my kids as long as I can. To fight like hell, on my terms, and not let ALS win.
People ask me how I stay positive. The truth? Some days, I don’t. Some days, ALS feels unbearable. But I made a promise—to myself, to my kids—that I’d keep going, keep laughing, and keep fighting. We all have those days when life knocks us down. I would challenge you to ask yourself, what keeps you going when things get tough?
I refuse to be just a statistic.
ALS may be undefeated, but that doesn’t mean I can’t go out swinging. If you could turn into a cyborg with one cool upgrade, what would it be? (I call dibs on laser eyes. 👀🔥)
If you’re with me in this fight, share this and help spread awareness. One day, this disease WILL have a cure.
In the meantime, if you want to follow my journey, check out my Facebook page or Instagram at Team Bill Duff. 🚀
And until then, I’ll keep rolling forward.
#ALS #NeverGiveUp #CyborgDad #EyeGazeJedi #ALSWarrior #DadJokesForever #ALSCANADA