We are Canada’s national ALS organization. Our mission is deeply rooted in the experiences of the community of people who confront this relentless disease every day through advancing research, support, advocacy, and knowledge. Unlike any other organization in Canada, we focus on a nationwide approach that blends direct support with pioneering research, aiming not only to manage ALS but to continue to ensure no Canadian faces ALS alone. We work hard toward a world where this disease no longer steals moments, memories, and mobility – a world free of ALS.
A community united by compassion and understanding
ALS affects the lives of thousands of Canadians, each experience confronted by unique challenges. ALS Canada aims to improve these experiences by offering direct support and research-driven insights, ensuring that every individual and family affected by ALS feels supported, informed, and part of a larger, caring community. This approach sets us apart, emphasizing a holistic, proactive strategy against ALS.
The importance of impact: Making a difference together
Our work at ALS Canada is driven by the belief that, united, we can achieve remarkable things. But we don’t just believe it; we have designed our organization around it, building strategic impact goals that focus on creating tangible, meaningful change that not only addresses the immediate needs of the ALS community but also lays the groundwork for a world free of ALS. Each goal reflects our commitment to unity and collective strength, ensuring that every voice is heard and every effort is maximized.
Our impact goals and outcomes: Transforming lives together
Research
ALS Canada is at the forefront of our country’s ALS research, investing in high-impact studies, engaging in global initiatives, and expanding our research and clinical capacity. Our leadership in research enhances Canada’s standing and will prime Canada to become a preferred location for the most promising ALS clinical trials. These efforts are pushing boundaries and offering real hope to families, giving their loved ones access to pioneering treatments that may extend life, slow disease progression, and improve quality of life.
Support
Our commitment to ensuring equitable and timely access to the highest standard of care means that people affected by ALS receive personalized support that respects their dignity and considers their situation. We aim to be a catalyst for continued change and improvements in clinical care and the availability of treatments. We approach our work with the goal of helping fulfill individual’s needs, providing them and their families with the necessary resources to navigate their ALS experience with strength and confidence.
Advocacy
By mobilizing a unified voice and empowering people to take collective action, we advocate for impactful policies that prioritize the needs of the ALS community. This advocacy ensures that the voices of people living with ALS resonate in the halls of power provincially, nationally, and around the world, fostering a better understanding among policymakers and the public, and driving changes that make a real difference.
Knowledge
As a trusted leader and go-to resource for all things ALS, we empower individuals with critical information that helps inform their decisions and actions. This strengthens the entire ALS community, helping people with ALS, their families, and caregivers feel more informed, connected, and capable of facing the challenges of ALS.
Creating hope and enhancing lives
Through these strategic efforts, ALS Canada advances research and care and deeply impacts the daily lives of people with ALS and their families. Our role as a catalyst for change means that Canadians have better access to essential services and breakthrough treatments. It ensures that the collective voice of the ALS community is amplified, leading to greater awareness and understanding of ALS across Canada. Each step we take is a step towards a future where ALS can be managed more effectively or even cured, bringing hope and relief to thousands of families across the nation.
Join us in the fight against ALS
Your involvement makes a profound difference. Whether you seek support, want the latest news, or are considering donating, your participation strengthens our community and brings us closer to a world free of ALS. United by our courage and compassion, we are a force against ALS.