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News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Press Releases

    Health Canada Accepts New Drug Submission for tofersen

    March 19, 2024
    Today, Biogen Canada announced that Health Canada has accepted its New Drug Submission (NDS) for tofersen for the treatment of ALS in adults who have a pathogenic variant (also known as a mutation) in the superoxide dismutase 1 (SOD1) gene.…
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    Press Releases

    PHOENIX Trial of AMX0035 did not meet endpoints

    March 08, 2024
    Amylyx Pharmaceuticals has announced that the PHOENIX Phase 3 clinical trial of AMX0035 did not meet its primary or secondary endpoints. The results from the 48-week study, which involved participants from the United States of America and Europe, showed no…
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    Research

    Funding discoveries in ALS research: ALS Canada and Brain Canada announce more than $1.3 million for 2023 Discovery Grants

    March 05, 2024
    Eight projects receive funding to find answers and fuel discoveries in ALS research Toronto – In their effort to fund progress and innovation in amyotrophic lateral sclerosis (ALS) research, the ALS Society of Canada (ALS Canada) and Brain Canada are…
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    Press Releases

    Health Canada issues a Notice of Non-Compliance–Withdrawal for masitinib

    March 01, 2024
    AB Science announced that Health Canada has issued a Notice of Non-Compliance–Withdrawal (NON-W) for masitinib in ALS due to unresolved clinical concerns and data reliability issues.   A Notice of Non-Compliance-Withdrawal (NON-W) indicates that the drug submission did not meet the…
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    Research

    ALS Canada and Brain Canada invest in future leader of ALS research with 2023 Career Transition Award

    February 27, 2024
    Quebec researcher receives $250,000 over three years to investigate gene-based research to treat ALS Toronto – The ALS Society of Canada (ALS Canada) and Brain Canada are dedicated to a shared mission to advance amyotrophic lateral sclerosis (ALS) research. Together,…
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    Advocacy

    ALS community calls on the Ontario government to invest $6.6 million in Budget 2024 to address urgent disparities in access to ALS services and care

    February 21, 2024
    Implementation of the Ontario Provincial ALS Program is critical for addressing the urgent needs of Ontarians living with ALS and their families Toronto – Today, people living with amyotrophic lateral sclerosis (ALS) and their caregivers join the ALS Society of…
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    Advocacy

    Toronto Star op-ed recognizes disparities in Ontario health care system for people living with ALS

    February 20, 2024
    Today, The Toronto Star has published an op-ed from Tammy Moore, CEO of the ALS Society of Canada (ALS Canada), which recognizes that Ontario’s health framework isn’t designed to address the unique challenges of ALS – a devastating disease that…
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    Research

    Canadians living with ALS unite to CAPTURE ALS

    February 16, 2024
    Amyotrophic lateral sclerosis (ALS) is a complex disease with varying symptoms and severity for people affected. Due to its heterogeneity, diagnosing the disease can be challenging and finding effective treatments can also be difficult. CAPTURE (Comprehensive…
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