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News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Research

    ALS Canada Webinar: Update on ALS clinical trials in Canada and around the globe

    June 17, 2021
    Dr. David Taylor, VP of Research, hosted a webinar on June 15, 2021 exploring the current state of clinical trials globally and in Canada, where he also addressed some key questions around specific studies and clinical trials in…
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    Volunteers

    ALS Canada Strengthens Board of Directors with four new appointments in 2021/22

    May 04, 2021
    We are pleased to extend a warm welcome to Alyssa Barry, Ken Chan, Elizabeth Gandolfi and Dr. Angela Genge who recently joined the ALS Canada Board of Directors. Alyssa Barry became connected to the ALS community when her uncle was…
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    Advocacy

    ALS Canada Advocacy Update

    May 03, 2021
    Welcome to ALS Canada’s first Advocacy Update. This new blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government.  Please note that because…
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    Volunteers

    ALS Canada thanks outgoing Board members for their commitment to a future without ALS

    May 03, 2021
    With deep appreciation for their contributions of time and expertise, we thank Carol Cottrill, Daniel Riverso and Vincent Quinn whose terms on the ALS Canada Board of Directors have come to an end, and Josette Melanson who becomes Past Chair…
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    Research

    New $2.85M grant to push ALS research forward

    April 23, 2021
    ALS Canada and Brain Canada join forces with Alnylam Pharmaceuticals and Regeneron to support a collaborative platform that will unite ALS researchers and accelerate breakthroughs. Together, Brain Canada and ALS Canada are pleased to announce the awarding of a $2,850,000 2019…
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    Advocacy

    Provide your input into shaping a national strategy for rare disease drugs

    March 08, 2021
    ALS may not be considered rare by all. But the community of approximately 3,000 Canadians living with the disease today is small enough to face unique challenges, with access to therapies – from clinical trial to reimbursement – being a…
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    Research

    Collaboration in Pursuit of a Future Without ALS: $1 Million Invested in ALS Research

    February 11, 2021
    Toronto – Sustained investment in transformative research is vital to unlocking the mysteries around the causes and progression of ALS, a devastating terminal disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of…
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    Research

    Top Research Stories of 2020

    February 09, 2021
    Although 2020 was an unpredictable and challenging year, the ALS research community continued to push forward with major scientific advances in Canada and internationally. As identified by the ALS Canada Research Team, here are the most newsworthy research stories of…
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