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News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Advocacy

    Provide your input into shaping a national strategy for rare disease drugs

    March 08, 2021
    ALS may not be considered rare by all. But the community of approximately 3,000 Canadians living with the disease today is small enough to face unique challenges, with access to therapies – from clinical trial to reimbursement – being a…
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    Research

    Collaboration in Pursuit of a Future Without ALS: $1 Million Invested in ALS Research

    February 11, 2021
    Toronto – Sustained investment in transformative research is vital to unlocking the mysteries around the causes and progression of ALS, a devastating terminal disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of…
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    Research

    Top Research Stories of 2020

    February 09, 2021
    Although 2020 was an unpredictable and challenging year, the ALS research community continued to push forward with major scientific advances in Canada and internationally. As identified by the ALS Canada Research Team, here are the most newsworthy research stories of…
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    Research

    ALS Research Update, November 2020

    November 25, 2020
    While 2020 has been an unpredictable and challenging year on many fronts, the ALS Canada Research Program continues to observe positive momentum in ALS research. This month you’ll learn about results from two different Phase 2 clinical trials in ALS;…
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    Research

    Oh the humanity: A look at modeling human ALS in the lab

    November 25, 2020
    Hosted on October 21, 2020 this webinar featured panelists: Dr. Kevin Eggan, Harvard Stem Cell Institute Dr. Victor Rafuse, Dalhousie University Dr. Rita Sattler, Barrow Neurological Institute Dr. Clive Svendsen, Cedars-Sinai Regenerative Medicine Institute This webinar is available…
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    Research

    Stay on target: Moving promising avenues closer to the clinic

    November 25, 2020
    Hosted on November 18, 2020 this webinar featured panelists: Dr. Sandrine Da Cruz, VIB-KU Leuven Center for Brain & Disease Research Dr. Piera Pasinelli, Thomas Jefferson University Dr. Ludo Van Den Bosch, VIB-KU Leuven Center for Brain &…
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    Research

    Ice Bucket Challenge Proceeds Help Fund First Canadian ALS Care and Management Guideline

    November 16, 2020
    Best practice recommendations establish national standard and address issues important to care in Canada Toronto - The Ice Bucket Challenge continues to make an impact. Proceeds from the highly successful 2014 viral sensation have helped fund a comprehensive…
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    Research

    ALS Doesn’t Stop – So Neither Can Research Investment

    November 12, 2020
    The ALS Canada Research Program awards $650K for three innovative new research initiatives, with an additional $1 million to be announced in 2021 TORONTO – The ALS Society of Canada today announced that as part of its 2020 research commitment, the…
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    The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society of Canada. Registration No. 10670-8977-RR0002.

    2025 Amyotrophic Lateral Sclerosis Society of Canada

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