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News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Press Releases

    CADTH launches call for patient input on AMX0035

    October 27, 2021
    Make your voice heard! The Canadian Agency for Drugs and Technology in Health (CADTH) has posted a call for patient input on AMX0035. ALS Canada will be preparing a submission reflecting the perspectives of the ALS community and we are…
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    Press Releases

    Phase 3 Valour results for tofersen presented by Biogen

    October 19, 2021
    November 1, 2021 – The Phase 3 VALOR results for tofersen did not show a statistically significant change in disease progression as assessed by the ALSFRS-R scale, however a number of other outcome measures suggested the treatment was able to…
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    Research

    ALS Canada Research Update, October 2021

    October 15, 2021
    ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the October 2021 Research Update, you’ll learn about the progress researchers have made in…
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    Advocacy

    ALS Canada Advocacy Update – October 2021

    October 14, 2021
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,…
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    Advocacy

    Knowing the issues that matter to the ALS Community: ALS Election Commitments

    September 15, 2021
    The 2021 federal election is wrapping up in less than a week! With Election Day scheduled for Monday, September 20, 2021, now more than ever, it’s important to know the issues that matter to you before you cast your vote. ALS…
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    Advocacy

    ALS Canada Advocacy Update – August 2021

    August 18, 2021
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,…
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    Advocacy

    ALS Canada Advocacy Update – June 2021

    June 23, 2021
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,…
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    Research

    Bonus Session | 2021 ALS Canada Research Forum

    June 17, 2021
    In this special bonus session from the 2021 ALS Canada Research Forum, Dr. Martin Duennwald, from Western University, gave a talk entitled “Hsp90 and its co-chaperones modulate protein misfolding in ALS.” You will also have the chance to…
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