News

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team. From global conferences to impactful partnerships, our Research Team had a strong start to 2025.  By actively engaging with the global ALS community, supporting ALS…

Université de Montréal researcher awarded $250,000 over three years for a research study exploring a therapeutic approach with the potential to unlock new treatments Toronto, ON — The ALS Society of Canada (ALS Canada) and Brain Canada continue their…

Medals were presented to Canadians to recognize their contributions to advocacy, research, and support towards a world free of ALS Toronto, ON - The ALS Society of Canada (ALS Canada) was honoured to be selected to recognize 39 Canadians…

The ALS Society of Canada (ALS Canada) is proud to launch the Children and Youth Resource Hub to provide children, youth, and families with important educational materials that support the understanding of amyotrophic lateral sclerosis (ALS) – a disease that…

ALS Canada has submitted the patient input submission for Canada’s Drug Agency (CDA)’s review of QALSODY (tofersen), a therapy recently approved by Health Canada. This submission is a crucial step in ensuring that voices of the ALS community are reflected…

TORONTO —Eight Canadian research projects have been awarded funding to drive progress and innovation in amyotrophic lateral sclerosis (ALS) research through the 2024 ALS Canada-Brain Canada Discovery Grant Program, with a total investment of $1,170,000 from the ALS Society of…

Health Canada has approved QALSODY (tofersen injection) under a Notice of Compliance with Conditions (NOC/c) for the treatment of ALS in adults who have a pathogenic variant (also known as a mutation) in the superoxide dismutase 1 (SOD1) gene. This…

What is a Brain-Computer Interface (BCI)?A brain-computer interface (BCI) is a system that allows direct communication between the brain and an external device, such as a computer. BCI studies often include participants living with ALS, as the technology holds…