News

The approval of Qalsody (tofersen) by Health Canada marked a transformative moment in the treatment of ALS caused by pathogenic variants in the SOD1 gene. This new genetic therapy offers hope for a subset of people with ALS and marks…

Advocates on Parliament Hill call for immediate federal investment to accelerate progress, protect Canadian research data, and build on Canada’s leadership in ALS research to drive innovation OTTAWA, October 2, 2025  – Today, people living with amyotrophic lateral sclerosis (ALS),…

Cyclists gear up for a challenge along scenic vineyard routes to fuel research and support for people living with ALS JORDAN, ON, October 1, 2025 – On Sunday, October 5, cyclists will take to the rolling vineyards and country roads…

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team, and what is happening in the ALS research world. By actively engaging with the global ALS community, supporting ALS research advancements, and providing knowledge to people affected by…

The story of CALNISC and CAPTURE ALSTen years ago, Canada was falling behind in studying people living with ALS.   The biggest, most impactful way to study the complexity and variability of ALS is through observational studies that collect information and…

High-energy fundraiser challenges teams to pull a 42,000-lb transport truck in support of people affected by ALS TORONTO, September 17 – This fall, the ALS Society of Canada (ALS Canada) is taking its adrenaline-pumping Pull to End ALS fundraiser on…

For more than 30 years, the ALS Canada Research Program has been supporting Canadian researchers through foundational grants, investing in early-stage ideas. These initial investments often laid the groundwork for follow-up funding, enabling promising projects to scale and evolve into…

Honouring Kevin Daly’s legacy of supporting young people affected by ALS as they pursue their dreams and contribute to a world free of ALS TORONTO – September 4, 2025 — The ALS Society of Canada (ALS Canada) and the Kevin…