News

Honouring Kevin Daly’s legacy of supporting young people affected by ALS as they pursue their dreams and contribute to a world free of ALS TORONTO – September 4, 2025 — The ALS Society of Canada (ALS Canada) and the…

The ALS Society of Canada (ALS Canada) is pleased to announce that Maya Binet, MSc, has assumed the role of Canada’s first ALS National Genetic Counsellor. Based at the University of Calgary, this new position is part of a two-year,…

To understand how a new treatment reaches someone with ALS, we need to explore the rigorous scientific journey behind it. From early-stage research in laboratories, through the complex phases of clinical trials, to the cautious use of off-label therapies, each…

Canada has the potential to emerge as a global leader in ALS clinical trials, providing individuals affected by ALS with more opportunities to engage in promising new treatments. To help turn this potential into a reality, the ALS Society of…

ALS researchers worldwide continue to build upon existing work and make new discoveries in the hopes of a world free of ALS. In the August 2025 Research Update, explore new insights into ALS treatments, biomarker detection, environmental factors, genetics, and…

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team, and what is happening in the ALS research world. By actively engaging with the global ALS community, supporting ALS research advancements, and providing knowledge to people affected by…

This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada…

On June 12, a diverse and passionate group of researchers, clinicians, ALS organizations, and people affected by ALS gathered in Toronto for the National ALS Research Summit. Hosted by ALS Canada, the day-long workshop marked a…