Toronto, November 12, 2025 – The ALS Society of Canada (ALS Canada) and ALS Association are pleased to welcome the global ALS community to Toronto, Canada as co-hosts of the International Alliance of ALS/MND Associations 2025 Alliance Meeting and Allied Professionals Forum November 29 to December 2. This pivotal event brings together people living with and affected by ALS, health care professionals, researchers, and advocates from every corner of the world.
Despite the many challenges and uncertainties we are facing around the world, the ALS Society of Canada and the ALS Association have remained steadfast in their commitment to advancing the fight against ALS. Their joint leadership in co-hosting this year’s meetings exemplifies the power of unity and hope.
The 2025 meetings will serve as a platform for international collaboration, knowledge sharing, and the strengthening of partnerships that are essential for accelerating progress in ALS care, research, advocacy, and resources. Delegates from over 30 countries will come together to share insights, highlight progress, and work collectively toward a world free of ALS.
“In these turbulent times, it is more important than ever for the global ALS community to unite,” said Tammy Moore, CEO of ALS Canada. “Our shared commitment to improving the lives of people affected by ALS transcends borders. By co-hosting these meetings, we reaffirm our dedication to collaboration and hope, ensuring that no one faces ALS alone.”
“Our organizations are deeply committed to fostering an environment that is accessible and inclusive to all members of the international ALS community,” said Calaneet Balas, President and CEO of the ALS Association. “These meetings are essential to advancing global collaboration and improving the lives of people impacted by ALS.”
ALS Canada and the ALS Association extend their gratitude to all participants, partners, and supporters who are contributing to the success of the event. Together, the international ALS community continues to inspire and innovate in the journey toward a cure.
“Each year these meetings bring hope to the community,” said Cathy Cummings, CEO of the International Alliance of ALS/MND Associations. “Our focus remains steadfast on collaboration and knowledge exchange, while upholding the values of inclusion, respect, and scientific excellence that define our organizations.”
ALS Canada, the ALS Association, and the International Alliance look forward to welcoming everyone to Canada and coming together to create meaningful progress in our work toward a world free of ALS/MND.
For further information about the meetings or to register, visit the International Alliance website by clicking here.
About ALS and the ALS Society of Canada
Amyotrophic lateral sclerosis (ALS) is an unrelenting and currently terminal disease. It progressively paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe. Nearly 4,000 Canadians live with ALS and approximately 1,000 Canadians are diagnosed each year. Four out of five people living with ALS will die within two to five years of their diagnosis.
The ALS Society of Canada is working to change what it means to live with ALS. Grounded in and informed by the Canadian ALS community, we respond to the urgent unmet need for life-changing treatments by investing in high-quality research that will fuel scientific discovery and by engaging industry, supporting increased clinical capacity, and advocating for equitable, affordable, and timely access to proven therapies.
Responding to the tremendous need for current and credible ALS knowledge, awareness, and education, we empower Canadians affected by ALS to navigate the current realities of ALS, be informed consumers of ALS information, and advocate effectively for change. In Ontario, we provide direct community services to help people navigate ALS.
Founded in 1977, ALS Canada is a registered charity whose work is powered by generous donors who share our vision of a world free of ALS. For more information visit als.ca and follow @ALSCanada.
About the ALS Association
The ALS Association is the largest ALS organization in the world. The ALS Association funds global research collaborations, assists people with ALS and their families through its nationwide network of care and certified clinical care centers, and advocates for better public policies for people with ALS. The mission of the ALS Association is to make ALS livable and cure it. For more information about the ALS Association, visit our website at www.als.org.
About the International Alliance of ALS/MND Associations
The International Alliance of ALS/MND Associations unites organizations around the world that support people living with amyotrophic lateral sclerosis (ALS) or motor neuron disease (MND). Through collaboration, the Alliance enables global awareness, knowledge sharing, and advocacy to improve quality of life and advance the search for effective treatments. Founded in 1992, the Alliance now represents more than 70 member organizations in approximately 40 countries, connecting people living with ALS/MND, caregivers, researchers, and healthcare professionals. Together, we drive initiatives that amplify the voices of those affected by ALS/MND, promote equitable access to care, and accelerate progress toward a world free of ALS/MND.