An ALS diagnosis affects the entire family. As families adapt to changing circumstances and caregiving responsibilities, routines shift, and priorities evolve. Along the way, young people can miss out on some of the activities, friendships, and experiences that help shape childhood and adolescence. Creating opportunities for connection, personal growth, and simply being a kid can make a meaningful difference during this time.
Thanks to the generous support of our donors, the ALS Society of Canada has partnered with AWC Grief Support to host a weekend retreat for children and youth in Ontario, ages 8 to 17, affected by ALS. Designed specifically for young people whose parent or guardian is living with ALS, the retreat offers a chance to step away from daily challenges, connect with peers who understand their experiences, and create lasting memories.
Through outdoor adventure, creative activities, campfires, games, and therapist-facilitated group sessions, the retreat promotes building friendships, confidence, resilience, and a stronger sense of belonging.
The ALS Youth Retreat will take place from October 23–25, 2026 and is free for participants. The weekend will be facilitated by experienced grief therapists and trained volunteers, whose expertise will help create a welcoming and supportive experience for all participants.
Registration is open from July 27 – September 23, and space is limited. You must be a registered client with ALS Canada to register. To learn more about the retreat and registration, click here.
Supporting caregivers, too
ALS Canada has partnered with AWC Grief Support to offer a free Caregiver Mental Health Program. Learn more about the program.