Available Resources

The non-motor aspects of ALS can fall into many categories. In this fact sheet are some of the more common non-motor symptoms, although people living with ALS may also experience other, less common ones.

This fact sheet aims to help educators understand what ALS is, what students might experience while navigating an ALS diagnosis of someone close to them, and how school staff and school administrators can support students who have been impacted by ALS, especially in learning and school performance.

The ALS Canada Children and Youth Resource Hub provides educational materials that will address the unique challenges faced by children and youth impacted by ALS.

Raising our voices and engaging with candidates during the election is a critical way to keep ALS on the radar.

Advocating for ALS Care in Ontario

Press releases are used in the ALS landscape to communicate important information to journalists and the public. Press releases may be released by pharmaceutical companies, academic and research institutions, and non-profit organizations, amongst other outlets. It is important to critically analyze information from a press release to help you become a well-informed consumer of ALS information.

Glossary of Genetic Terms

While travel can present unique challenges for people with ALS, a comfortable travel experience is possible with planning and patience. This fact sheet offers tips for planning a trip while living with ALS, whether it is a local day trip or a longer excursion including air travel. These tips may be helpful for things like running errands or visiting a specialist in another city, too.

It is important for people with ALS to feel closeness and connection with their intimate partners, and to experience healthy sexuality, whether with a partner or solo. While ALS does not affect sexual functioning directly, the disease progression affects mobility, mood, strength, and breathing, so creativity and experimentation may be required to achieve satisfying sexual intimacy.

Primary Lateral Sclerosis (PLS) is a rare progressive neurodegenerative disease which is similar to ALS. However, ALS and PLS are not the same thing. Unlike ALS, PLS only affects the upper motor neurons. ALS affects both the upper and lower motor neurons.

ALS is a progressive and fatal neurodegenerative disease that does not yet have a cure. When caring for you, your healthcare team will strive to maximize quality of life from the time you are diagnosed until end-of-life.

Kennedy’s Disease is a rare genetic disease with symptoms that are similar to ALS. It is also called spinal and bulbar muscular atrophy.